Life stories and multiple sclerosis

biographical work and training of expert patients in France

Authors

DOI:

https://doi.org/10.26512/lc.v24i0.18992

Keywords:

Chronic illness, Learning, Experience, Biography

Abstract

This paper presents the results of a follow-up study of a group of six patients suffering from multiple sclerosis during an expert patient training in France and shows the effects of using life history as a tool to explore patients' personal and interpersonal experiences. The methodology of the work was based on the This paper presents the results of a follow-up study of a group of six patients suffering from multiple sclerosis during an expert patient training in France and shows the effects of using life history as a tool to explore patients' personal and interpersonal experiences. The methodology of the work was based on the biographical research approach. The results show that the participants were able to explore their experiences and find a space for the release of feelings through the narrative, contributing to the formation of expert patient and allowing patients to explore and value the experiences and acquired knowledge.

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Author Biography

Camila Aloisio Alves, Faculdade de Medicina de Petrópolis

Camila Aloisio Alves Psicóloga e sanitarista. Doutora em saúde da criança e da mulher pelo Instituto Nacional de Saúde da Mulher, Criança e Adolescente Fernandes Figueiras (IFF/Fiocruz). Pós-doutora pela Université Paris 13 Sorbonne Paris Cité/ Laboratoire Experice Axe A. Faculdade de Medicina de Petrópolis. Collège International de Recherche Biographique/ CIRBE. E-mail: camila.aloisioalves@gmail.com

References

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Published

2018-11-15

How to Cite

Alves, C. A. (2018). Life stories and multiple sclerosis: biographical work and training of expert patients in France. Linhas Críticas, 24, e18992. https://doi.org/10.26512/lc.v24i0.18992

Issue

Section

Dossiê: Narrativas, educação e saúde: o sujeito na cidade

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