Percepção de familiares de pessoas com transtornos alimentares acerca do tratamento: uma metassíntese da literatura

Autores/as

DOI:

https://doi.org/10.1590/0102.3772e38417.pt

Palabras clave:

Distúrbios do ato de comer, Anorexia nervosa, Bulimia, Família, Tratamento

Resumen

Relações familiares parecem ter uma contribuição relevante na etiopatogenia dos transtornos alimentares (TAs), o que faz com que as diretrizes internacionais de tratamento recomendem a participação da família. Esta metassíntese teve como objetivo sintetizar e reinterpretar os resultados de estudos qualitativos primários sobre a percepção de familiares de pessoas com TAs acerca do tratamento. A estratégia de busca foi organizada utilizando-se a ferramenta SPIDER e as análises foram realizadas por dois revisores independentes. A partir de 1.115 estudos originariamente recuperados de 6 bases de dados (CINAHL, LILACS, PsycINFO, PubMed, Scopus e Web of Science), foram selecionados 19 artigos. Os resultados convergem para o reconhecimento de que a família é parte do processo saúde-doença e precisa ser considerada como destinatária de cuidados, não apenas como coadjuvante/acompanhante no cuidado à pessoa acometida. Como a dinâmica familiar tem contribuição relevante no desenvolvimento e na manutenção dos TAs, é necessário investir na transformação das relações familiares para que se possam obter ganhos mais efetivos e duradouros no tratamento.

Descargas

Los datos de descargas todavía no están disponibles.

Citas

American Psychiatric Association [APA] (2006). Practice guideline for the treatment of patients with eating disorders. American Psychiatric Association.

American Psychiatric Association [APA] (2014). DSM: Manual diagnóstico e estatístico de transtornos mentais (5ª ed.) (M. I. C. Nascimento, Trad.). Artmed.

Attili, G., Di Pentima, L., Toni, A., & Roazzi, A. (2018). High anxiety attachment in eating disorders: Intergenerational transmission by mothers and fathers. Paidéia (Ribeirão Preto), 28, e2813. http://dx.doi.org/10.1590/1982-4327e2813

Berends, T., van de Lagemaat, M., van Meijel, B., Coenen, J., Hoek, H. W., & van Elburg, A. A. (2018). Relapse prevention in anorexia nervosa: Experiences of patients and parents. International Journal of Mental Health Nursing, 27, 1546-

https://doi.org/10.1111/inm.12456

Cabrera, C. C. (2006). Estratégias de intervenção interdisciplinar no cuidado com o paciente com transtorno alimentar: O tratamento farmacológico. Medicina (Ribeirão Preto), 39(3), 375-380. https://doi.org/10.11606/issn.2176-7262.v39i3p375-380

Canetti, L., Kanyas, K., Lerer, B., Latzer, Y., & Bachar, E. (2008). Anorexia nervosa and parental bonding: The contribution of parent-grandparent relationships to eating disorder psychopathology. Journal of Clinical Psychology, 64(6), 703-

https://doi.org/10.1002/jclp.20482

Carvalho, L. F., Pianowski, G., & Santos, M. A. (2019). Guidelines for conducting and publishing systematic reviews in psychology. Estudos de Psicologia (Campinas), 36, e180144. http://dx.doi.org/10.1590/1982-0275201936e180144

Critical Appraisal Skills Programme. (2018). CASP (10 questions to help you make sense of a Qualitative research) Checklist. https://creativecommons.org/licenses/by-nc-sa/3.0/

Davies, S. (2012). The importance of PROSPERO to the National Institute for Health Research. Systematic Reviews, 1, 5. https:// doi.org/10.1186/2046-4053-1-5

Engman-Bredvik, S., Carballeira Suarez, N., Levi, R., & Nilsson, K.

(2016). Multi-family therapy in anorexia nervosa: A qualitative study of parental experiences. Eating Disorders, 24(2), 186-197. https://doi.org/10.1080/10640266.2015.1034053

Espíndola, C. R., & Blay, S. L. (2009). Anorexia nervosa treatment from the patient perspective: A metasynthesis of qualitative studies. Annals of Clinical Psychiatry, 21(1), 38-48.

Fassino, S., Pierò, A., Tomba, E., & Abbate-Daga, G. (2009). Factors associated with dropout from treatment for eating disorders: A comprehensive literature review. BMC Psychiatry, 9, article number: 67. https://doi.org/10.1186/1471-244X-9-67

Fava, M. V., & Peres, R. S. (2011). Do vazio mental ao vazio corporal: Um olhar psicanalítico sobre as comunidades virtuais pró-anorexia. Paidéia (Ribeirão Preto), 21(50), 353-361. https://doi.org/10.1590/S0103-863X2011000300008

Ferreira, I. M. S., Souza, A. P. L., Azevedo, L. D. S., Leonidas, C., Santos, M. A., & Pessa, R. P. (2021). The influence of mothers on the development of their daughter’s eating disorders: An integrative review. Archives of Clinical Psychiatry, 48(2), 168-177. http://dx.doi.org/110.15761/0101-60830000000300

Highet, N., Thompson, M., & King, R. M. (2005). The experience of living with a person with an eating disorder: The impact on the carers. Eating Disorders, 13(4), 327-344. https://doi.org/10.1080/10640260591005227

Hillege, S., Beale, B., & McMaster, R. (2006). Impact of eating disorders on family life: Individual parents’ stories. Journal of Clinical Nursing, 15(8), 1016-1022. https://doi.org/10.1111/j.1365-2702.2006.01367.x

Jauregui-Lobera, I., Bolanos-Rios, P., & Garrido-Casals, O. (2011). Parenting styles and eating disorders. Journal of Psychiatric and Mental Health Nursing, 18(8), 728-735. https://doi.org/10.1111/j.1365-2850.2011.01723.x

Johns, G., Taylor, B., John, A., & Tan, J. (2019). Current eating disorder healthcare services: the perspectives and experiences of individuals with eating disorders, their families and health professionals: Systematic review and thematic synthesis.

BJPsych Open, 5(4), 1-10. https://doi.org/10.1192/bjo.2019.48 Leonidas, C., & Santos, M. A. (2015a). Family relations in eating disorders: The genogram as instrument of assessment. Ciência & Saúde Coletiva, 20(5), 1435-1447. https://doi.

org/10.1590/1413-81232015205.07802014

Leonidas, C., & Santos, M. A. (2015b). Relacionamentos afetivo-familiares em mulheres com anorexia e bulimia. Psicologia: Teoria e Pesquisa, 31(2), 181-191. https://doi.org/10.1590/0102-37722015021711181191

Leonidas, C., & Santos, M. A. (2020). Percepção do apoio social e configuração sintomática na Anorexia Nervosa. Psicologia: Ciência e Profissão, 40, 1-14. https://doi.org/10.1590/1982-3703003207693

Leonidas, C., Nazar, B. P., Munguía, L., & Santos, M. A. (2019). How do we target the factors that maintain anorexia nervosa? A behaviour change taxonomical analysis. International Review of Psychiatry, 31(4), 403-410. https://doi.org/10.1080/09540261.2019.1624509

Lopes, A. L. M., & Fracolli, L. A. (2008). Revisão sistemática de literatura e metassíntese qualitativa: Considerações sobre sua aplicação na pesquisa em Enfermagem. Texto & Contexto - Enfermagem, 17(4), 771-778. https://doi.org/10.1590/S0104-07072008000400020

Ma, J. L. C. (2012). Perceived process of change in family therapy for eating disorders in Shenzhen, China: A qualitative study. Journal of Family Psychotherapy, 23(3), 184-201. https://doi.org/10.1080/08975353.2012.705638

Ma, J. L. C., & Lai, K. (2006). Perceived treatment effectiveness of family therapy for chinese patients suffering from anorexia nervosa: A qualitative inquiry. Journal of Family Social Work, 10(2), 59-74. https://doi.org/10.1300/J039v10n02_04

MacDonald, P., Rhind, C., Hibbs, R., Goddard, E., Raenker, S., Todd, G., Schmidt, U., & Treasure, J. (2014). Carers’ assessment, skills and information sharing (CASIS) trial: A qualitative study of the experiential perspective of caregivers

and patients. European Eating Disorders Review, 22(6), 430- 438. https://doi.org/10.1002/erv.2320

McArdle, S. (2019). Parents’ experiences of health services for the treatment of eating disorders: A qualitative study. Journal of Mental Health, 28(4), 404-409. https://doi.org/10.1080/09638237.2017.1417558

McFarlane, W. R. (2016). Family interventions for schizophrenia and the psychoses: A review. Family Process, 55(3), 460-482. https://doi.org/10.1111/famp.12235

McMaster, R., Beale, B., Hillege, S., & Nagy, S. (2004). The parent experience of eating disorders: Interactions with health professionals. International Journal of Mental Health Nursing, 13(1), 67-73. https://doi.org/10.1111/j.1447-

2004.00310.x

Methley, A. M., Campbell, S., Chew-Graham, C., McNally, R., & Cheraghi-Sohi, S. (2014). PICO, PICOS and SPIDER: A comparison study of specificity and sensitivity in three search tools for qualitative systematic reviews. BMC Health Services

Research, 14(1), 579. https://doi.org/10.1186/s12913-014-0579-0

Mitrofan, O., Petkova, H., Janssens, A., Kelly, J., Edwards, E., Nicholls, D. McNicholas, F., Simic, M., Eisler, I., Ford, T., & Byford, S. (2019). Care experiences of young people with eating disorders and their parents: Qualitative study. BJPsych Open, 5(1). https://doi.org/10.1192/bjo.2018.78

Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & Prisma Group. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. PLoS Medicine, 6(7), e1000097. https://doi.org/10.1371/journal.pmed.1000097

Moraes, R. B., Santos, M. A., & Leonidas, C. (2021). Repercussões do acesso às redes sociais em pessoas com diagnóstico de anorexia nervosa. Estudos e Pesquisas em Psicologia, 21(3), 1178-1199. https://doi.org/10.12957/epp.2021.62734

Oliveira, E. A., & Santos, M. A. (2006). Perfil psicológico de pacientes com anorexia e bulimia nervosas: A ótica do psicodiagnóstico. Medicina (Ribeirão Preto), 39(3), 353-360. https://doi.org/10.11606/issn.2176-7262.v39i3p353-360

Patel, S., Shafer, A., Brown, J., Bulik, C., & Zucker, N. (2013). Parents of children with eating disorders: Developing theory-based health communication messages to promote caregiver well-being. Journal of Health Communication, 19(5), 593-608. https://doi.org/10.1080/10810730.2013.821559

Pinheiro, A. P., Raney, T. J., Thornton, L. M., Fichter, M. M., Berrettini, W. H., Goldman, D., Halmi, K. A., Kaplan, A. S., Strober, M., Treasure, J., Woodside, D. B., Kaye, W. H., & Bulik, C. M. (2010). Sexual functioning in women with eating

disorders. International Journal of Eating Disorders, 43(2), 123-129. https://doi.org/10.1002/eat.20671

Portaria nº 3.088, 23 de dezembro de 2011 (2011). Institui a Rede de Atenção Psicossocial para pessoas com sofrimento ou transtorno mental e com necessidades decorrentes do uso de crack, álcool e outras drogas, no âmbito do Sistema Único de

Saúde (SUS). Diário Oficial da União.

Prior, A.-L., Woodward, D., Hoefkens, T., Clayton, D., Thirlaway, K., & Limbert, C. (2018). Telephone helplines as a source of support for eating disorders: Service user, carer, and health professional perspectives. Eating Disorders, 26(2), 164-184. https://doi.org/10.1080/10640266.2017.1364934

Ramos, T. M. B., & Pedrão, L. J. (2013). Acolhimento e vínculo em um serviço de assistência a portadores de transtornos alimentares. Paidéia (Ribeirão Preto), 23(54), 113-120. https://doi.org/10.1590/1982-43272354201313

Sandelowski, M., & Barroso, J. (2003). Creating metasummaries of qualitative findings. Nursing Research, 52(4), 226-33. https://doi.org/10.1097/00006199-200307000-00004

Sandelowski, M., & Barroso, J. (2006). Handbook for synthesizing

qualitative research. Springer Publishing.

Santos, M. A., Leonidas, C., & Costa, L. R. S. (2016). Grupo multifamiliar no contexto dos transtornos alimentares: A experiência compartilhada. Arquivos Brasileiros de Psicologia, 68(3), 43-58.

Scorsolini-Comin, F., & Santos, M. A. (2012). Psicoterapia como estratégia de tratamento dos transtornos alimentares: Análise crítica do conhecimento produzido. Estudos de Psicologia (Campinas), 29(Suplemento), 851-863. https://doi.

org/10.1590/S0103-166X2012000500021

Sibeoni, J., Orri, M., Valentin, M., Podlipski, M. A., Colin, S., Pradere, J., & Revah-Levy, A. (2017). Metasynthesis of the views about treatment of anorexia nervosa in adolescents: Perspectives of adolescents, parents, and professionals.

PLOS ONE, 12(1), 1-21. https://doi.org/10.1371/journal. pone.0169493

Sicchieri, J. M. F., Bighetti, F., Borges, N. J. B. G., Santos. J. E., & Ribeiro, R. P. P. (2006). Manejo nutricional dos transtornos alimentares. Medicina (Ribeirão Preto), 39(3), 371-374. https://doi.org/10.11606/issn.2176-7262.v39i3p371-374

Silva, M. N. R. M. O., Abbad, G. S., & Montezano, L. (2019). Practices and therapeutic strategies of the psychosocial care centers alcohol and drugs. Paidéia (Ribeirão Preto), 29, e2903. http://dx.doi.org/10.1590/1982-4327e2903

Simões, M., & Santos, M. A. (2021). Paternity and parenting in the context of eating disorders: An integrative literature review. Psicologia: Teoria e Pesquisa, 37, e37459. https://doi.org/10.1590/0102.3772e37459

Siqueira, A. B. R., Santos, M. A., & Leonidas, C. (2020). Confluências das relações familiares e transtornos alimentares: Revisão integrativa da literatura. Psicologia Clínica, 32(1), 123-149. https://dx.doi.org/10.33208/PC1980-5438v0032n01A06

Souza, A. P. L., & Pessa, R. P. (2016). Tratamento dos transtornos alimentares: Fatores associados ao abandono. Jornal Brasileiro de Psiquiatria, 65(1), 60-67. https://doi.org/10.1590/0047-2085000000104

Souza, A. P. L., Valdanha-Ornelas, E. D., Santos, M. A., & Pessa, R. P. (2019). Significados do abandono do tratamento para pacientes com transtornos alimentares. Psicologia: Ciência e Profissão, 39, e188749. https://doi.org/10.1590/1982-

Souza, L. V., & Santos, M. A. (2009). A construção social de um grupo multifamiliar no tratamento dos transtornos alimentares. Psicologia: Reflexão e Crítica, 22(3), 483-492. http://dx.doi.org/10.1590/S0102-79722009000300020

Souza, L. V., & Santos, M. A. (2010). A participação da família no tratamento dos transtornos alimentares. Psicologia em Estudo (Maringá), 15(2), 285-294. http://dx.doi.org/10.1590/S1413-73722010000200007

Souza, L. V., & Santos, M. A. (2012). Familiares de pessoas diagnosticadas com transtornos alimentares: Participação em atendimento grupal. Psicologia: Teoria e Pesquisa, 28(3), 325-334. http://www.scielo.br/pdf/ptp/v28n3/a08v28n3.pdf

Sun, K. S., Lam, T. P., Kwok, K. W., Chong, K. Y., Poon, M. K., & Wu, D. (2019). Treatment of Chinese adolescents with anorexia nervosa in Hong Kong: The gap between treatment expectations and outcomes. PLOS ONE, 14(5), e0216582. https://doi.org/10.1371/journal.pone.0216582

Thomas, J., & Harden, A. (2008). Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology, 8(1), 45. https://doi.org/10.1186/1471-2288-8-45

Tierney, S. (2005). The treatment of adolescent anorexia nervosa: A qualitative study of the views of parents. Eating Disorders, 13(4), 369-379. https://doi.org/10.1080/10640260591005254

Tong, A., Flemming, K., McInnes, E., Oliver, S., & Craig, J. (2012). Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ. BMC Medical Research Methodology, 12(1), 181. https://doi.org/10.1186/1471-2288-12-18

Toubøl, A., Koch-Christensen, H., Bruun, P., & Nielsen, D. S. (2019). Parenting skills after participation in skills-based training inspired by the New Maudsley Method: A qualitative study in an outpatient eating disorder setting. Scandinavian Journal of Caring Sciences, 33(4), 959-968. https://doi.org/10.1111/scs.12694

Treasure, J., Parker, S., Oyeleye, O., & Harrison, A. (2020). The value of including families in the treatment of anorexia nervosa. European Eating Disorders Review, 1-9. https://doi.org/ 10.1002/erv.2816

Treasure, J., Zipfel, S., Micali, N., Wade, T., Stice, E., Claudino, A. ... Wentz, E. (2015). Anorexia nervosa. National Review, 1, 1-21. https://doi.org/10.1038/nrdp.2015.74

Valdanha, E. D., Scorsolini-Comin, F., Peres, R. S., & Santos, M. A. (2013). Influência familiar na anorexia nervosa: em busca das melhores evidências científicas. Jornal Brasileiro de Psiquiatria, 62(3), 225-233. https://doi.org/10.1590/S0047-20852013000300007

Vall, E., & Wade, T. D. (2015). Predictors of treatment outcome in individuals with eating disorders: A systematic review and meta-analysis. International Journal of Eating Disorders, 48(7), 946-971. https://doi.org/10.1002/eat.22411

Van Langenberg, T., Duncan, R. E., Allen, J. S., Sawyer, S. M., Le Grange, D., & Hughes, E. K. (2018). “They don’t really get heard”: A qualitative study of sibling involvement across two forms of family-based treatment for adolescent anorexia nervosa. Eating Disorders, 26(4), 373-387. https://doi.org/10.1080/10640266.2018.1453632

Viera, A. J., & Garrett, J. M. (2005). Understanding interobserver agreement: The kappa statistic. Family Medicine, 37(5), 360-363.

Wallis, A., Rhodes, P., Dawson, L., Miskovic-Wheatley, J., Madden, S., & Touyz, S. (2017). Relational containment: Exploring the effect of family-based treatment for anorexia on familial relationships. Journal of Eating Disorders, 5(1), 5-27. https://doi.org/10.1186/s40337-017-0156-0

Whitney, J., Currin, L., Murray, J., & Treasure, J. (2012). Family work in anorexia nervosa: A qualitative study of carers’ experiences of two methods of family intervention. European Eating Disorders Review, 20(2), 132-141. https://doi.

org/10.1002/erv.1077

Winn, S., Perkins, S., Murray, J., Murphy, R., & Schmidt, U. (2004). A qualitative study of the experience of caring for a person with bulimia nervosa. Part 2: Carers’ needs and experiences of services and other support. International Journal of Eating Disorders, 36(3), 269-279. https://doi.org/10.1002/eat.20068

World Health Organization (2018). International classification of diseases, 11th revision (ICD-11). WHO. https://icd.who.int/en.

Wufong, E., Rhodes, P., & Conti, J. (2019). “We don’t really know what else we can do”: Parent experiences when adolescent distress persists after the Maudsley and family-based therapies for anorexia nervosa. Journal of Eating Disorders, 7(5). https://doi.org/10.1186/s40337-019-0235-5

Zabala, M. J., MacDonald, P., & Treasure, J. (2009). Appraisal of caregiving burden, expressed emotion and psychological distress in families of people with eating disorders: A systematic review. European Eating Disorders Review, 17(5), 338-349. https://doi.org/10.1002/erv.925

Publicado

2022-10-03

Cómo citar

Gil, M., Simões, M. da M., Oliveira-Cardoso, Érika A. de, Pessa, R. P., Leonidas, C., & Santos, M. A. dos. (2022). Percepção de familiares de pessoas com transtornos alimentares acerca do tratamento: uma metassíntese da literatura. Psicologia: Teoria E Pesquisa, 38. https://doi.org/10.1590/0102.3772e38417.pt

Número

Sección

Revisão da Literatura

Artículos más leídos del mismo autor/a

1 2 > >>