Paternal Experience and Paternal Involvement in the Context of the Down Syndrome

Authors

  • Camila Guedes Henn Universidade Federal do Rio Grande do Sul
  • Cesar Augusto Piccinini Universidade Federal do Rio Grande do Sul

Keywords:

Paternal involvement, Down Syndrome, Fatherhood

Abstract

The aim of the present study was to investigate, through a qualitative approach, paternal involvement and paternal experience in the context of the Down Syndrome (DS. More specifically, it aimed to understand the impact of DS on paternal involvement and experience. Six fathers of children with DS were interviewed, whose children were between nine months and three years and three months. The results indicated that fathers had been participating actively in children’s activities and caretaking, being responsible for several tasks, although the available time to spend with them was restricted because of their jobs. In spite of both objective (financial, time, job) and subjective difficulties (acceptance, sadness, preoccupation), they demonstrated good adaptation to their child with DS, being able to carry out their role as a father.

 

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References

Bardin, L. (1977). Análise de Conteúdo. São Paulo: Edições 70.
Cabrera, N. J. Tamis-LeMonda, C. S. Bradley, R. H. Hofferth, S., & Lamb, M. E. (2000). Fatherhood in the twenty-first century. Child Development, 71(1), 127-136.
Cahill, B. M., & Glidden, L. M. (1996). Influence of child diagnosis on family and parental functioning: Down Syndrome versus other disabilities. American Journal on Mental Retardation, 101, 149-160.
Cunningham, C. C. (1996). Families of children with Down Syndrome. Down Syndrome Research and Practice, 4(3), 87-95.
Cuskelly, M., & Dadds, M. (1992). Behavioural problems in children with Down’s Syndrome and their siblings. Journal of Child Psychology and Psychiatry, 33(4), 749-761.
Dessen, M. A., & Silva, N. L. P. (2000). Deficiência mental e família: Uma análise da produção científica. Cadernos de Psicologia e Educação Paidéia, 10, 12-23.
Garcias, G. L., & Roth, M. G. (2004). Conversando sobre a Síndrome de Down. Pelotas: Educat.
GIDEP - Grupo de Interação Social, Desenvolvimento e Psicopatologia. (1998a). Ficha de Contato Inicial. Manuscrito não-publicado, Instituto de Psicologia, UFRGS, Porto Alegre.
GIDEP - Grupo de Interação Social, Desenvolvimento e Psicopatologia. (1998b). Termo de Consentimento Livre e Esclarecido. Manuscrito não-publicado, Instituto de Psicologia, UFRGS, Porto Alegre.
GIDEP - Grupo de Interação Social, Desenvolvimento e Psicopatologia. (1998c). Entrevista de dados Demográficos do Casal. Manuscrito não-publicado, Instituto de Psicologia, UFRGS, Porto Alegre.
GIDEP/NUDIF - Grupo de Interação Social, Desenvolvimento e Psicopatologia. (2004). Entrevista sobre a gestação e o parto. Manuscrito não-publicado, Instituto de Psicologia, UFRGS, Porto Alegre.
Hedov, G., Annerén, G., & Wikblad, K. (2000). Self-perceived health in Swedish parents of children with Down’s Syndrome. Quality of Life Research, 9, 415-422.
Henn, C. G. Piccinini, C. A., & Garcias, G. L. (2008). A família no contexto da Síndrome de Down: Revisando a literatura. Psicologia em Estudo, 13(3), 485-493.
Herbert, E. (1995). Parents’ reported responses to the disclosure of Down’s Syndrome. Down Syndrome Research and Practice, 3(2), 39-44.
Hornby, G. (1995). Father’s views of the effects on their families of children with Down Syndrome. Journal of Child and Family Studies, 4(1), 103-117.
Jarrett, M. H. (2007). A vida familiar com seu filho (M R. Lucena, Trad.). Em K. Stray-Gundersen (Org.), Crianças com Síndrome de Down: guia para pais e educadores (pp. 111-133). Porto Alegre: Artmed (Original published in 1995).
King, L., A. & Patterson, C. (2000). Reconstructing life goals after the birth of a child with Down Syndrome: finding happiness and growing. International Journal of Rehabilitation and Health, 5(1), 17-30.
Kozma, C. (2007). Problemas clínicos e tratamentos (M. R. Lucena, Trad.). Em K. Stray-Gundersen (Org.), Crianças com Síndrome de Down: guia para pais e educadores (pp. 64-88). Porto Alegre: Artmed.
Lamb, M. E. (1997). Fathers and Child Development: An Introductory Overview and Guide. Em M. E. Lamb (Ed.), The role of the father in child development (pp. 1-18). New York: John Wiley & Sons.
Lamb, M. E., & Billings, L. A. L. (1997). Fathers of Children with Special Needs. Em M. E. Lamb (Ed.), The role of the father in child development (pp. 179-190). New York: John Wiley & Sons.
Lamb, M. E., Pleck, J. H., Charnov, E. L., & Levine, J. A. (1985). Paternal behavior in humans. American Zoologist, 25, 883-894.
Laville, C., & Dionne, J. (1999). A Construção do Saber. Porto Alegre: Artes Médicas.
Lewis, C., & Dessen, M. A. (1999). O Pai no Contexto Familiar. Psicologia: Teoria e Pesquisa, 15(1), 9-16.
McConnaughey, F., & Quinn, P. O. (2007). O desenvolvimento da criança com Síndrome de Down (M. R. Lucena, Trad.). Em K. Stray-Gundersen (Org.), Crianças com Síndrome de Down: guia para pais e educadores (pp. 134-158). Porto Alegre: Artmed.
Newcombe, N. (1999). Desenvolvimento Infantil: abordagem de Mussen (8ª ed.) (C. Buchweitz, Trad.) Porto Alegre: Artes Médicas.
NUDIF - Grupo de Interação Social, Desenvolvimento e Psicopatologia. (2005). Entrevista sobre paternidade e envolvimento paterno no contexto da Síndrome de Down. Manuscrito não-publicado, Instituto de Psicologia, UFRGS, Porto Alegre.
Oliveira, L. M. (2001). O desejo parental diante do impacto do diagnóstico de Síndrome de Down. Dissertação de Mestrado, Universidade Federal do Rio Grande do Sul, Porto Alegre.
Parke, R. D. (1996). Fatherhood. Cambridge, Massachusetts: Harvard University Press.
Pelchat, D. Bisson, J. Ricard, N. Perreault, M., & Bouchard, J. M. (1999). Longitudinal effects of an early family intervention programme on the adaption of parents of children with a disability. International Journal of Nursing Studies, 36, 465-477.
Pleck, J. H. (1997). Paternal Involvement: Levels, Sources and Consequences. Em M. E. Lamb (Ed.), The role of the father in child development (pp. 66-103). New York: John Wiley & Sons.
Pupo-Filho, R. A. (1996). Síndrome de Down: e agora doutor? Rio de Janeiro: WVA.
Roach, M. A., Orsmond, G. I., & Barratt, M. S. (1999). Mothers and fathers of children with Down Syndrome: Parental stress and involvement in childcare. American Journal on Mental Retardation, 104(5), 422-436.
Rodrigue, J. R., Morgan, S. B., & Geffken, G. R. (1992). Psychosocial Adaptation of Fathers of Children with Autism, Down Syndrome, and Normal Development. Journal of Autism and Developmental Disorders, 22(2), 249-263.
Sanders, J. L., & Morgan, S. M. (1997). Family Stress and Adjustment as Perceived by Parents of Children with Autism and Down Syndrome: Implications for Intervention. Child and Family Behavior Therapy, 19(4), 15-32.
Schwartzman, J. S. (2003). Generalidades. Em J. S. Schwartzman (Org.), Síndrome de Down (pp. 16-31). São Paulo: Memnon-Mackenzie.
Silva, M. R., & Piccinini, C. A. (2001). Entrevista sobre a Paternidade e o Envolvimento Paterno. Manuscrito não-publicado, Instituto de Psicologia, UFRGS, Porto Alegre.
Silva, N. L. P., & Dessen, M. A. (2003). Crianças com Síndrome de Down e suas Interações Familiares. Psicologia: Reflexão e Crítica, 16(3), 503-514.
Sloper, P., Knussen, C., Turner, S., & Cunningham, C. (1991). Factors related to stress and satisfaction with life in families of children with Down Syndrome. Journal of Child Psychology and Psychiatry, 32(4), 655-676.
Stake, R. E. (1994). Case Studies. Em N. Denzin & Y. Lincoln (Eds.) Handbook of Qualitative Research (pp. 236-247). London: Sage.
Stores, R., Stores, G., Fellows, B., & Buckley, S. (1998). Daytime behaviour problems and maternal stress in children with Down’s Syndrome, their siblings, and non-intellectually disabled and other intellectually disabled peers. Journal of Intellectual Disability Research, 42(3), 228-237.
Stratford, B. (1997). Crescendo com a Síndrome de Down. Brasília: CORDE. 

Published

2011-02-12

How to Cite

Henn, C. G., & Piccinini, C. A. (2011). Paternal Experience and Paternal Involvement in the Context of the Down Syndrome. Psicologia: Teoria E Pesquisa, 26(4), 623–631. Retrieved from https://periodicos.unb.br/index.php/revistaptp/article/view/17487

Issue

Section

Estudos Empíricos

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