Psychosocial Aspects Associated to Different Phases of the Pediatric Liver Transplantation
Keywords:
Pediatric liver transplantation, Transplant phases, Psychosocial aspectsAbstract
This study aimed to investigate the psychosocial aspects associated to different phases of the pediatric liver transplantation process. The participants were six mothers of transplanted children aging 4 to 8 years old and who had undergone liver transplantation less than six years ago. Participants were interviewed on their feelings and family experiences during the different phases of the illness. Qualitative content analysis revealed that children and families suffered intensively during the whole process. The period of waiting for a donor and surgery were experienced as the most stressful because of the intense fear of death. The results enhanced the importance of early and systematic psychological assistance for the children and their families during all phases of the process.
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References
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maternidade no contexto do transplante hepático infantil.
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Parenting stress and parental post-traumatic stress disorder in
families after pediatric heart transplantation. The Journal of Heart
and Lung Transplantation, 26, 120-126.
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Transplante hepático. Jornal de Pediatria, 76, 198-208.
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Kärrfelt, H. M. E., Berg, U. B., & Lindblad, F. I. E. (2000). Renal
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enfermeiros no programa de transplante de fígado de um hospital
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quirúrgico ”“ causas y consecuencias del impacto psicobiologico
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fathers of pediatric transplant candidates: A pilot study. Pediatric
Transplantation, 11, 781-787.
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transplantation in children. An overview of physical, psychological
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(Eds.), Handbook of qualitative research (pp. 236-247). Londres:
Sage.
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uma abordagem psicanalítica da gravidez e do nascimento. São
Paulo: Casa do Psicólogo.
Tarbell, S. E., & Kosmach, B. (1998). Parental psychosocial
outcomes in pediatric liver and/or intestinal transplantation:
Pretransplantation and the early postoperative period. Liver
Transplantation and Surgery, 4, 378-387.
Turkienicz, D. (2003). A experiência dos pais de pacientes Ã
espera de transplante hepático infantil. Dissertação de Mestrado,
PUCRS, Porto Alegre.
Wray, J., Whitmore, P., & Radley-Smith, R. (2004). Pediatric
cardiothoracic domino transplantation: The psychologial costs and
benefits. Pediatric Transplantation, 8, 475-479.
psicoterapéutica en cirugía. Buenos Aires: Paidós.
Anton, M. C., & Piccinini, C. A. (2010). O impacto do
transplante hepático infantil na dinâmica familiar. Psicologia:
Reflexão e Crítica, 23, 187-197.
Anton, M. C., & Piccinini, C. A. (submetido). A experiência da
maternidade no contexto do transplante hepático infantil.
Anton, M. C., & Piccinini, C. A. (submetido). Desenvolvimento
emocional em crianças submetidas a transplante hepático.
Biagi, A. U., & Sugano, C. F. (2008). Transplante de órgãos. Em
B. W. Romano (Ed.), Manual de psicologia clínica para hospitais
(pp. 145-208). São Paulo: Casa do Psicólogo.
Bucuvalas, J. C., Britto, M., Krug, S., Ryckman, C., Atherton,
H., Alonso, P., Balistreri, W. F., & Kotagal, U. (2003). Health-related
quality of life in pediatric liver transplant recipients: A single-center
study. Liver Transplantation, 9, 62-71.
Castro, K., & Moreno-Jiménez, B. (2005). Funcionamiento
familiar en situación de trasplante de órganos pediátrico.
Interamerican Journal of Psychology, 39, 383-388.
Cole, C. R., Bucuvalas, J. C., Hornung, R W., Krug, S.,
Ryckman, F. C., Atherton, H., Alonso, M. P., Balistreri, W. F.,
& Kotagal, U. (2004). Impact of liver transplantation on health
related quality of life in children less than 5 years old. Pediatric
Transplantation, 8, 225-230.
Engle, D. (2001). Psychosocial aspects of the organ transplant
experience: What has been established and what we need for the
future. Journal of Clinical Psychology, 57, 521-549.
Farley, L. M., DeMaso, D. R., D’Angelo, E., Kinnamon, C.,
Bastardi, H., Hill, C. E., Blume, E. D., & Logan, D. E. (2007).
Parenting stress and parental post-traumatic stress disorder in
families after pediatric heart transplantation. The Journal of Heart
and Lung Transplantation, 26, 120-126.
Ferreira, C. T., Vieira, S. M. G., & Silveira, T. R. (2000).
Transplante hepático. Jornal de Pediatria, 76, 198-208.
Freud, A. (1952). The role of bodily illness in the mental life
of children. The Psychoanalytic Study of the Child, VII, 69-81.
Jara, P., & Hierro, L. (2007). Transplante hepático em niños.
Gastroenterologia e Endoscopia Digestiva, 26, 239-243.
Kärrfelt, H. M. E., Berg, U. B., & Lindblad, F. I. E. (2000). Renal
transplantation in children: Psychological and donation-related
aspects from the parental perspective. Pediatric Transplantation,
4, 305-312.
Laville, C., & Dione, J. (1999). A construção do saber: manual
de metodologia da pesquisa em ciências humana. (L. M. Siman,
Trad.). Porto Alegre: Artes Médicas. (Trabalho original publicado
em 1997)
Masi, G., & Brovedani, P. (1999). Adolescents with congential
heart diesease: Psychopathological implications. Adolescence, 34,
185-191.
Massarollo, M., & Kurcgant, P. (2000). O vivencial dos
enfermeiros no programa de transplante de fígado de um hospital
público. Revista Latino-Americana de Enfermagem, 8, 66-72.
Olbrisch, M. E., Benedict, S. M., Ashe, K., & Levenson, J.
L. (2002). Psychological assessment and care of organ transplant
patients. Journal of Consulting and Clinical Psychology, 70, 771-
783.
Prug, D., & Eckhardt, L. (1976). Children’s reactions to illness,
hospitalization and surgery. Em A. M. Freedman, H. I. Kaplan &
B. J. Sadock (Eds.), Comprehensive textbook of psychiatry/II (pp.
2100-2108). Baltimore: The Williams & Wilkins.
Rinaldi, G. (2001). Prevención psicosomática del paciente
quirúrgico ”“ causas y consecuencias del impacto psicobiologico
de una cirurgía. Buenos Aires: Paidós.
Simons, L., Ingerski, L. M., & Janicke, D. M. (2007). Social
support, coping, and psychological distress in mothers and
fathers of pediatric transplant candidates: A pilot study. Pediatric
Transplantation, 11, 781-787.
Sokal, E. M. (1995). Quality of life after orthotopic liver
transplantation in children. An overview of physical, psychological
and social outcome. European Journal of Pediatrics, 154, 171-175.
Stake, R. E. (1994). Case studies. Em N. Denzin & Y. Lincoln
(Eds.), Handbook of qualitative research (pp. 236-247). Londres:
Sage.
Szejer, M., & Stewart, R. (1997). Nove meses na vida da mulher:
uma abordagem psicanalítica da gravidez e do nascimento. São
Paulo: Casa do Psicólogo.
Tarbell, S. E., & Kosmach, B. (1998). Parental psychosocial
outcomes in pediatric liver and/or intestinal transplantation:
Pretransplantation and the early postoperative period. Liver
Transplantation and Surgery, 4, 378-387.
Turkienicz, D. (2003). A experiência dos pais de pacientes Ã
espera de transplante hepático infantil. Dissertação de Mestrado,
PUCRS, Porto Alegre.
Wray, J., Whitmore, P., & Radley-Smith, R. (2004). Pediatric
cardiothoracic domino transplantation: The psychologial costs and
benefits. Pediatric Transplantation, 8, 475-479.
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Published
2010-12-07
How to Cite
Anton, M. C., & Piccinini, C. A. (2010). Psychosocial Aspects Associated to Different Phases of the Pediatric Liver Transplantation. Psicologia: Teoria E Pesquisa, 26(3), 455–464. Retrieved from https://periodicos.unb.br/index.php/revistaptp/article/view/17467
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Estudos Empíricos
