Quality of life of people living with HIV/AIDS
Effects of illness perception and coping strategies
Keywords:
HIV/AIDS, Self-regulation model, Illness perception, Coping strategies, Quality of lifeAbstract
This study aims to investigate the quality of life (QOL) predictors of people living with HIV/AIDS (PLWHA), from the perspective of Leventhal’s Self-Regulation Model, in which the influence of the illness perception on QOL is mediated by coping strategies. Ninety-five PLWHA answered to the instruments Brief IPQ, Brief Cope and WHOQOL-HIV BREF concerning, respectively, illness perception, coping strategies and QOL. The results indicate that illness perception has direct and indirect effects in QOL, mediated by coping strategies. The more HIV is perceived as threatening, the worse is the perception of QOL of PLWHA; however, the increased use of acceptance, distraction and instrumental support coping strategies and the less use of behavioral disengagement and positive reinterpretation could mitigate this negative effect.
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References
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coping, CD4+ T-cell count, and non-HIV-related variables with
health-related quality of life among an ambulatory HIV-positive
patient population. Quality of Life Research, 21, 993-1003.
doi:10.1007/s11136-011-0017-2
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Ministério da Saúde.
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Universidade Federal de Goiás. Recuperado de http://www.
sbpcnet.org.br/livro/63ra/conpeex/mestrado/trabalhosmestrado/
mestrado-sarah-vieira.pdf
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The Brief Illness Perception Questionnaire. Journal of
Psychosomatic Research, 60, 631-637. doi:10.1016/j.
jpsychores.2005.10.020
Câmara, M. C. S. (2009). Estratégias de enfrentamento e percepção
da doença em pais de crianças com doença crônica: o
contexto do cuidador. Diversitas, 5, 97-110. Recuperado
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99982009000100009&script=sci_arttext
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protocol’s too long: consider the brief COPE. International
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s15327558ijbm0401_6
DeGrezia, M. G., & Scrandis, D. (2015). Successful coping in
urban, community-dwelling older adults with HIV. Journal of
the Association of Nurses in AIDS Care : JANAC, 26, 151-163.
doi:10.1016/j.jana.2014.11.008
Faustino, Q. M., & Seidl, E. M. F. (2010). Intervenção cognitivocomportamental
e adesão ao tratamento em pessoas com HIV/
aids. Psicologia: Teoria e Pesquisa, 26, 121-130. doi: 10.1590/
S0102-37722010000100014
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Common-Sense Model of Illness Representations. Psychology
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Wu, A. W., Cleary, P. D., …Bozzette, S. A. (2000). Healthrelated
quality of life in patients with Human Immunodeficiency
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cognition: Using common sense to understand treatament
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and Research, 16(2), 143-163. doi: 10.1007/BF01173486
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Moss-Morris, R., Weinman, J., Petrie, K. J., Horne, R., Cameron,
L. D., & Buick, D. (2002). The Revised Illness Perception
Questionnaire (IPQ-R). Psychology and Health, 17(1), 1-16.
doi: 10.1080/08870440290001494
Nogueira, G. S., Seidl, E. M. F., & Tróccoli, B. T. (2016). Análise
fatorial exploratória do Questionário de Percepção de Doença
Versão Breve (Brief IPQ). Psicologia: Teoria e Pesquisa, 32(1),
161-168. doi: 10.1590/0102-37722016011871161168
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quality of life instrument to assess wellbeing in adults who
are HIV-Positive: A short form of the WHOQOL-HIV (31
items). AIDS and Behavior, 16, 452-460. doi: 10.1007/s10461-
010-9863-0
Reynolds, N. R., Sanzero Eller, L., Nicholas, P. K., Corless,
I. B., Kirksey, K., Hamilton, M. J., ...Holzemer, W. L.
(2009). HIV illness representation as a predictor of selfcare
management and health outcomes: a multi-site,
cross-cultural study. AIDS and Behavior, 13, 258-267. doi:
10.1007/s10461-007-9297-5
Seidl, E. M. F., Tróccoli, B. T., & Zannon, C. M. L. C. (2001).
Análise fatorial de uma medida de estratégias de enfrentamento.
Psicologia: Teoria e Pesquisa, 17, 225-234. doi: 10.1590/
S0102-37722001000300004
Seidl, E. M. F., Zannon, C. M. C., & Tróccoli, B. T. (2005). Pessoas
vivendo com HIV/Aids: enfrentamento, suporte social e
qualidade de vida. Psicologia: Reflexão e Crítica, 18, 188-195.
doi: 10.1590/S0102-79722005000200006
Skinner, E. A., Edge, K., Altman, J., & Sherwood, H. (2003).
Searching for the structure of coping: a review and critique of
category systems for classifying ways of coping. Psychological
Bulletin, 129, 216-269. doi: 10.1037/0033-2909.129.2.216
Tenenhaus, M., Vinzi, V. E., Chatelin, Y.-M., & Lauro, C. (2005).
PLS path modeling. Computational Statistics & Data Analysis,
48, 159-205. doi: 10.1016/j.csda.2004.03.005
The WHOQOL Group. (1995). The World Health Organization
quality of life assessment (WHOQOL): Position paper from
the world health organization. Social Sciences and Medicine,
41, 1403-1409. doi: 10.1023/A:1013867826835
The WHOQOL-HIV Group. (2003). Preliminary development
of The World Health Organization’s Quality of Life HIV
instrument (WHOQOL-HIV): analysis of the pilot version.
Social Science and Medicine, 57, 1259-1275. doi: 10.1016/
S0277-9536(02)00506-3
Vyavaharkar, M., Moneyham, L., Murdaugh, C., & Tavakoli, A.
(2012). Factors associated with quality of life among rural
women with HIV disease. AIDS and Behavior, 16, 295-303.
doi:10.1007/s10461-011-9917-y
Weinman, J., Petrie, K. J., Moss-Morris, R., & Horne, R. (1996). The
Illness Perception Questionnaire: A new method for assessing
the cognitive representation of illness. Psychology and Health,
11, 431-435. doi: 10.1080/08870449608400270
Zimpell, R. R., & Fleck, M. P. (2007). Quality of life in HIV
positive Brazilians: application and validation of the
WHOQOL-HIV, Brazilian version. Aids Care, 19, 923-930.
doi: 10.1080/09540120701213765
coping, CD4+ T-cell count, and non-HIV-related variables with
health-related quality of life among an ambulatory HIV-positive
patient population. Quality of Life Research, 21, 993-1003.
doi:10.1007/s11136-011-0017-2
Brito, H. L., & Seidl, E. M. F. (2015). Intervenções cognitivocomportamentais
em pacientes com HIV/aids: revisão de
literatura. Revista Brasileira de Terapia Comportamental e
Cognitiva, 17(2), 66-77.
Brasil (2015). Boletim epidemiológico HIV-Aids, Ano IV nº 1.
Brasília: Departamento de DST, Aids e Hepatites Virais,
Ministério da Saúde.
Brasileiro, S. V., Costa, L. R. R. S., & Cavalcante, J. L. (2012).
Adaptação transcultural do instrumento “Brief COPE” para
o Brasil. Dissertação de mestrado, Faculdade de Medicina,
Universidade Federal de Goiás. Recuperado de http://www.
sbpcnet.org.br/livro/63ra/conpeex/mestrado/trabalhosmestrado/
mestrado-sarah-vieira.pdf
Broadbent, E., Petrie, K. J., Main, J., & Weinman, J. (2006).
The Brief Illness Perception Questionnaire. Journal of
Psychosomatic Research, 60, 631-637. doi:10.1016/j.
jpsychores.2005.10.020
Câmara, M. C. S. (2009). Estratégias de enfrentamento e percepção
da doença em pais de crianças com doença crônica: o
contexto do cuidador. Diversitas, 5, 97-110. Recuperado
de http://www.scielo.org.co/scielo.php?pid=S1794-
99982009000100009&script=sci_arttext
Carver, C. S. (1997). You want to measure coping but your
protocol’s too long: consider the brief COPE. International
journal of behavioral medicine, 4, 92-100. doi: 10.1207/
s15327558ijbm0401_6
DeGrezia, M. G., & Scrandis, D. (2015). Successful coping in
urban, community-dwelling older adults with HIV. Journal of
the Association of Nurses in AIDS Care : JANAC, 26, 151-163.
doi:10.1016/j.jana.2014.11.008
Faustino, Q. M., & Seidl, E. M. F. (2010). Intervenção cognitivocomportamental
e adesão ao tratamento em pessoas com HIV/
aids. Psicologia: Teoria e Pesquisa, 26, 121-130. doi: 10.1590/
S0102-37722010000100014
Hagger, M. S., & Orbell, S. (2003). A meta-analytic review of the
Common-Sense Model of Illness Representations. Psychology
and Health, 18(2), 141-184. doi: 10.1080/088704403100081321
Hays, R. D., Cunningham, W. E., Sherbourne, C. D., Wilson, I. B.,
Wu, A. W., Cleary, P. D., …Bozzette, S. A. (2000). Healthrelated
quality of life in patients with Human Immunodeficiency
Virus infection in the United States: Results from the HIV cost
and services utilization study. American Journal of Medicine,
108, 714-722. doi: 10.1016/S0002-9343(00)00387-9
Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping.
New York: Springer.
Leventhal, H., Diefenbach, M., & Leventhal, E. A. (1992). Illness
cognition: Using common sense to understand treatament
adherence and affect cognition interactions. Cognitive Therapy
and Research, 16(2), 143-163. doi: 10.1007/BF01173486
Meyer, D., Leventhal, H., & Gutmann, M. (1985). Common-Sense
Models of Illness: The example of hypertension. Health
Psychology, 4, 115-135. doi: 10.1037//0278-6133.4.2.11
Moss-Morris, R., Weinman, J., Petrie, K. J., Horne, R., Cameron,
L. D., & Buick, D. (2002). The Revised Illness Perception
Questionnaire (IPQ-R). Psychology and Health, 17(1), 1-16.
doi: 10.1080/08870440290001494
Nogueira, G. S., Seidl, E. M. F., & Tróccoli, B. T. (2016). Análise
fatorial exploratória do Questionário de Percepção de Doença
Versão Breve (Brief IPQ). Psicologia: Teoria e Pesquisa, 32(1),
161-168. doi: 10.1590/0102-37722016011871161168
O’Connell, K. A., & Skevington, S. M. (2012). An international
quality of life instrument to assess wellbeing in adults who
are HIV-Positive: A short form of the WHOQOL-HIV (31
items). AIDS and Behavior, 16, 452-460. doi: 10.1007/s10461-
010-9863-0
Reynolds, N. R., Sanzero Eller, L., Nicholas, P. K., Corless,
I. B., Kirksey, K., Hamilton, M. J., ...Holzemer, W. L.
(2009). HIV illness representation as a predictor of selfcare
management and health outcomes: a multi-site,
cross-cultural study. AIDS and Behavior, 13, 258-267. doi:
10.1007/s10461-007-9297-5
Seidl, E. M. F., Tróccoli, B. T., & Zannon, C. M. L. C. (2001).
Análise fatorial de uma medida de estratégias de enfrentamento.
Psicologia: Teoria e Pesquisa, 17, 225-234. doi: 10.1590/
S0102-37722001000300004
Seidl, E. M. F., Zannon, C. M. C., & Tróccoli, B. T. (2005). Pessoas
vivendo com HIV/Aids: enfrentamento, suporte social e
qualidade de vida. Psicologia: Reflexão e Crítica, 18, 188-195.
doi: 10.1590/S0102-79722005000200006
Skinner, E. A., Edge, K., Altman, J., & Sherwood, H. (2003).
Searching for the structure of coping: a review and critique of
category systems for classifying ways of coping. Psychological
Bulletin, 129, 216-269. doi: 10.1037/0033-2909.129.2.216
Tenenhaus, M., Vinzi, V. E., Chatelin, Y.-M., & Lauro, C. (2005).
PLS path modeling. Computational Statistics & Data Analysis,
48, 159-205. doi: 10.1016/j.csda.2004.03.005
The WHOQOL Group. (1995). The World Health Organization
quality of life assessment (WHOQOL): Position paper from
the world health organization. Social Sciences and Medicine,
41, 1403-1409. doi: 10.1023/A:1013867826835
The WHOQOL-HIV Group. (2003). Preliminary development
of The World Health Organization’s Quality of Life HIV
instrument (WHOQOL-HIV): analysis of the pilot version.
Social Science and Medicine, 57, 1259-1275. doi: 10.1016/
S0277-9536(02)00506-3
Vyavaharkar, M., Moneyham, L., Murdaugh, C., & Tavakoli, A.
(2012). Factors associated with quality of life among rural
women with HIV disease. AIDS and Behavior, 16, 295-303.
doi:10.1007/s10461-011-9917-y
Weinman, J., Petrie, K. J., Moss-Morris, R., & Horne, R. (1996). The
Illness Perception Questionnaire: A new method for assessing
the cognitive representation of illness. Psychology and Health,
11, 431-435. doi: 10.1080/08870449608400270
Zimpell, R. R., & Fleck, M. P. (2007). Quality of life in HIV
positive Brazilians: application and validation of the
WHOQOL-HIV, Brazilian version. Aids Care, 19, 923-930.
doi: 10.1080/09540120701213765
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Published
2018-11-20
How to Cite
Catunda, C., Seidl, E. M. F., & Lemétayer, F. (2018). Quality of life of people living with HIV/AIDS: Effects of illness perception and coping strategies. Psicologia: Teoria E Pesquisa, 32(5). Retrieved from https://periodicos.unb.br/index.php/revistaptp/article/view/19394
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Section
Estudos Empíricos
