Patients’ Rights in Brazil: analysis of legislative proposals and the role of the Brazilian System of Health
DOI:
https://doi.org/10.26512/rbb.v15.2019.27130Abstract
Brazil is in disagreement with the other countries when it comes to the adoption of a national law on patients’ rights. This article aims to develop theoretical contributions that underlie the premise
that Brazil must adopt a national law on patients’ rights, as well as to problematize the role of the SUS in the promotion and defense of such rights. It is a research of theoretical-normative nature. I have
concluded that the endorsement of the need to have a patients ‘rights law in Brazil correlates with the assumption by the national SUS management body of its responsibility to protect patients’ rights
through effective measures. This proposed change corresponds to a tortuous and long-term path, but the starting point is the approval of Bill 5559/16
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References
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ARGENTINA. Derechos del paciente, historia clínica y consentimiento informado. Disponível em: http://servicios.infoleg.gob.ar/infolegInternet/anexos/160000-164999/160432/norma.htm. Acesso em: 8 abril 2019.
BRASIL. Decreto nº 8.901, de 10 de novembro de 2018. Disponível em: http://www.planalto.gov.br/ccivil_03/_Ato2015-2018/2016/Decreto/D8901.htm. Acesso em: 12 abril 2019.
________. Lei Nº 13.460, de 26 de Junho de 2017. Disponível em: http://www.planalto.gov.br/ccivil_03/_ato2015-2018/2017/lei/l13460.htm. Acesso em: 12 abril 2019.
________. Portaria nº 1.820, de 13 de agosto de 2009. Disponível em: http://bvsms.saude.gov.br/bvs/saudelegis/gm/2009/prt1820_13_08_2009.html. Acesso em: 12 abril 2019.
_________. Lei nº 8.142, de 28 de dezembro de 1990. Disponível em: http://www.planalto.gov.br/ccivil_03/leis/L8142.htm. Acesso em: 12 abril 2019.
COHEN, Jonathan; EZER, Tamar. Human rights in patient care: A theoretical and practical framework. December 2013. Health and Human Rights 15(2): E7-E19.
EQUADOR. Ley de derechos y amparo del paciente. Ley 77. Disponível em: https://www.salud.gob.ec/wp-content/uploads/downloads/2014/09/Normativa-Ley-de-Derechos-y-Amparo-del-Paciente.pdf. Acesso em: 8 abril 2019.
ESCOREL, Sarah; NASCIMENTO, Dilene Raimundo; EDLER, Flavio Coelho. As origens da Reforma Sanitária e do SUS. In: LIMA, Nísia Trindade; GERSCHMAN, Silvia; EDLER, Flavio Coelho; SUÁREZ, Júlio Manuel. Saúde e Democracia: história e perspectivas do SUS. Rio de Janeiro: Fiocruz, 2005, p. 59-83.
EUROPEAN COMMISSION. Patients’ Rights in the European Union Mapping eXercise. Luxembourg: Publications Office of the European Union, 2016.
FLOOD, Colleen M.; MAY, Kathryn. A patient charter of rights: how to avoid a toothless tiger and achieve system improvement. Canadian Medical Association Journal. October, 2, 2012, 184 (14).
HANS TRIER, A; VALDERAS, Jose M; WENSING, Michael; MARTIN, Helle Max; EGEBART, Jonas. Involving patients in patient safety programmes: A scoping review and consensus procedure by the LINNEAUS collaboration on patient safety in primary care. Eur J Gen Pract. 2015. Aug 14; 21(sup1): 56”“61.
HASHEM, Ferhana; BROWN, Patrick R. Decision making in NICE single technological appraisals: How does NICE incorporate patient perspectives? Health Expectations 2018:21:128-137.
HEALTH AND SOCIAL CARE ALLIANCE SCOTLAND. Being human: a human rights based approach to health and social care in Scotland. Disponível em: https://www.alliance-scotland.org.uk/wp-content/uploads/2017/11/ALLIANCE-Being-Human-publication-2017-1.pdf. Acesso em: 8 abril 2019.
HEALY, Judith. Patients as regulatory actors in their own health care. Disponível em: http://press-files.anu.edu.au/downloads/press/n2304/pdf/ch34.pdf. Acesso em: 8 abril 2019.
HUNT, Paul; BACKMAN, Gunilla. Health Systems and the right to the highest attainable standard of heath. In: CLAPHAM, Andrew; ROBINSON, Mary. Realizing the Right to Health. Zurique: Ruffer & Rub, 2009, p. 40-60.
JUN, Hye Suk. Concept analysis of patient rights. Korean Journal of Adult Nursing. V. 31, n. 1, 89-99. February, 2019.
MALIK, M. Advocacy in nursing - a review of the literature. J Adv Nurs. 1997; 25 (1):130-138.
MEESALA, Appalayya; PAUL, Justin. Service quality, consumer satisfaction and loyalty in hospitals: Thinking for the future. Journal of Retailing and Consumer Services. Volume 40, January 2018, Pages 261-269.
8ª CONFERENCIA NACIONAL DE SAÚDE. Relatório Final. Disponível em: http://bvsms.saude.gov.br/bvs/publicacoes/8_conferencia_nacional_saude_relatorio_final.pdf. Acesso em: 12 abril 2019.
PARANHOS, Denise. Direitos Humanos dos Pacientes Idosos. Rio de Janeiro: Lúmen Juris, 2018.
PELED-RAZ, Maya. Human rights in patient care and public health ”“ a common ground. Public Health Review. 2017. 38:29.
SCHYVE, Paul M. Patient Rights and Organization Ethics: The Joint Commission Perspective. Bioethics. Summer. 1996. 13-20.
SOULIOTIS, Kyriakos et al. Assessing patient Organizations participation in health policy: a comparative study in France and Italy. International Journal of Health Policy and Management. 2018, 7(1), 48-58.
UNITED NATIONS. H.R.4449 - Patient Self Determination Act of 1990. Disponível em: https://www.congress.gov/bill/101st-congress/house-bill/4449. Acesso em: 8 abril 2019.
URUGUAY. Ley Nº 18.335. Pacientes y usuarios de los servicios de salud se establecen sus derechos y obligaciones. Disponível em: https://legislativo.parlamento.gub.uy/temporales/leytemp1589866.htm. Acesso em: 8 abril 2019.
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2020-07-01
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Albuquerque, A. (2020). Patients’ Rights in Brazil: analysis of legislative proposals and the role of the Brazilian System of Health. Revista Brasileira De Bioética, 15, 1–24. https://doi.org/10.26512/rbb.v15.2019.27130
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