Individual and Family Variables in Psoriasis:
A Study with Patients and Partners
Keywords:
Psoriasis, Morbility, Quality of life, Dyadic adjustment, Coping, Body imageAbstract
In this paper the relationship between morbility, quality of life, marital adjustment, family coping and body image in 101 psoriatic patients and 78 partners was investigated. The results showed a positive relationship between patients and partners variables on dyadic adjustment, coping and morbidity. Negative quality of life and body image in patients are associated to more morbidity in partners. Patients in combined treatment and phototherapy showed lower quality of life and less satisfaction with body image. Better dyadic adjustment and less anxiety in partners predict higher adjustment in patients. Satisfaction with body image predicts better quality of life in patients. The results of this study emphasize the need to involve partners in program´s interventions. Clinical implications of the results are presented.
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References
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Basra, M. K. A., & Finlay, A. Y. (2007). The family impact of skin diseases: The greater patient concept. British Journal of Dermatology, 156(5), 929-937.
Basto, L. (2008). Variáveis psicossociais na psoríase: um estudo com doentes e seus parceiros. Dissertação de Mestrado, Universidade do Minho, Braga, Portugal.
Beck, A. T, Steer, R. A. & Brown, G. K. (1996). Manual for the Beck Depression Inventory-II. San Antonio, TX: Psychological Corporation.
Brito, L., & Pereira, M. G. (2008). Morbilidade psicológica e imagem corporal em doentes com psoríase: estudo das características psicométricas do Hospital Anxiety and Depression Scale. In C. Machado, L. Almeida, M. Guisande, M. Gonçalves, & V. Ramalho (Eds.), Livro de Actas da XIII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. A129). Braga: Universidade do Minho.
Busby, D. M., Christensen, C., Crabe, D. R., & Larson, J. H. (1995). A revision of the dyadic adjustment scale for use with distressed and non distressed couples: Construct hierarchy and multidimensional scales. Journal of Marital and Family Therapy, 21(3), 289-308.
Cabral, M. F., Baptista, A., Cabrita, J., Caetano, M., Cardoso, R., Cirne de Castro, J. L., Tellechea, O., Dessai, S., & Vieira, R. (2005). Avaliação epidemiológica da psoríase moderada a grave em Portugal e Espanha. Psoríase Newsletter, 2.
Choi, J., & Koo, J. Y. (2003). Quality of issues in psoriasis. Journal of the American Academy of Dermatology, 49 (suppl.), S57- 61.
Cotrim, H., & Pereira, M. G. (2008). Imagem corporal, morbilidade psicológica e qualidade de vida em doentes com cancro colorectal: Estudos das características psicométricas do Body Image Scale. In C. Machado, L. Almeida, M. Guisande, M. Gonçalves & V. Ramalho (Eds.), Livro de Actas da XIII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. A130). Braga: Universidade do Minho.
D’Ardenne, P. (2004). The couple sharing long-term illness. Sexual and Relationship Therapy, 19(3), 291-308.
Eghlileb, A. M., Davies, E. E. G., & Finlay, A. Y. (2007). Psoriasis has a major secondary impact on the lives of family members and partners. British Journal of Dermatology, 156(6), 1245-1250.
Esposito, M., Saraceno, R., Giunta, A., Maccarone, M., & Chimenti, S. (2006). An Italian study on psoriasis and depression. Dermatology, 212, 123”“127.
Finlay, A. Y. (2001). Psoriasis from the patient’s point of view. Archives of Dermatology, 137, 352-353.
Finlay, A. Y., & Coles, E. C. (1995). The effect of severe psoriasis on the quality of life of 369 patients. British Journal of Dermatology, 132(2), 236-44.
Frangos, J. E., & Kimball, A. B. (2008). Divorce â„marriage ratio in patients with psoriasis compared to patients with other chronic medical conditions. Journal of Investigative Dermatology, 128(suppl. 1), S87.
Fry, L. (2004). An atlas of psoriasis (2ª ed.). London: Taylor & Francis.
Gardinal, I., Ammoury, A., & Paul, C. (2009). Moderate to severe psoriasis: From topical to biological treatment. Journal of the European Academy of Dermatology and Venereology, 23, 1324”“1326.
Gordon, P. A., & Perrone, K. M. (2004). When spouses become caregivers: Counseling implications for younger couples. Journal of Rehabilitation, 70(2), 27-32.
Gottlieb, A. B. (2005). Therapeutic options in the treatment of psoriasis and atopic dermatitis. Journal of the American Academy of Dermatology, 53, s3-16.
Griffiths, C. E., & Barker, J. N. (2007). Pathogenesis and clinical features of psoriasis. Lancet, 370, 263-271.
Hayes, J., & Koo, J. (2010). Psoriasis: Depression, anxiety, smoking, and drinking habits. Dermatology Therapy, 23(2), 174-80.
Hopwood, P., Fletcher, I., Lee, A., & Al Ghazal, S. (2001). A body image scale for use with cancer patients. European Journal of Cancer, 37, 189-197.
Jerant, A. F., Von Friederichs-Fitzwater, M. M., & Moore, M. (2005). Patients’ perceived barriers to active self-management of chronic conditions. Patient Education and Counseling, 57, 300-307.
Kellet, S. (2002). Shame-focused acne: A biopsychosocial conceptualisation and treatment rationale. In P. Gilbert & J. Miles (Eds.), Body shame: Conceptualisation, research and treatment (pp. 135-154). East Sussex: Brunner-Routledge.
Kent, G. (2000). Understanding the experiences of people with disfigurements: An integration of four models of social and psychological functioning. Psychology, Health and Medicine, 5(2), 117-129.
Koo, J., Lee, E., Lee, C. S., & Lebwohl, M. (2004). Psoriasis. Journal of the American Academy of Dermatology, 50, 613”“622.
Leibovici, V., Canetti, L., Yahalomi, S., Cooper-Kazaz, R., Bonne, O., Ingber, A., & Bachar, E. (2010). Well being, psychopathology and coping strategies in psoriasis compared with atopic dermatitis: A controlled study. Journal of the European Academy of Dermatology and Venereology, 24, 897”“903.
Magin, P., Adams, J., Heading, G., Pond, D., & Wayne, S. (2009). The psychological sequelae of psoriasis: Results of a qualitative study. Psychology, Health & Medicine, 14(2), 150-161.
McCubbin, H. I., Larsen, A. S., & Olson, D. H. (1991). F-COPES: Family Crisis Oriented Personal Evaluation Scales. In H. McCubbin & H. Thompson (Eds.), Family assessment inventories for research and practice (2a ed., pp. 203-216). Madison, WI: University of Wisconsin-Madison.
McIntyre, L., & McIntyre, S. (1995). State Trait Anxiety Inventory (STAI) ”“ versão de investigação. Braga: Universidade do Minho.
McIntyre, M., & Araújo-Soares, V. (1999). Inventário da Depressão de Beck: Estudo de validade numa amostra de doentes com dor crónica. In A.P. Soares, S. Araújo, & S. Caires (Eds.), Livro de Actas da VII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. 245-255). Braga: Universidade do Minho.
Mendes, F., & Relvas, A. P. (1999). Family relationships and primary prevention of drug use on early adolescence. Valencia: IREFREA & European Commission.
Northouse, L. L., Mood, D., Templin, T., Mellon, S., George, T. (2000). Couples’ patterns of adjustment to colon cancer. Social Science & Medicine, 50(2), 271-284.
Papadopoulos, L., & Walker, C. (2003). Understanding skin problems. London: John Wiley & Sons.
Pereira, M. G. (2003). Escala Revista de Ajustamento Diádico (RDAS) ”“ Versão de Investigação. Braga: Universidade do Minho.
Pereira, M. G., & Brito, L. (2008). Psoriasis Disability Index ”“ Versão de Investigação. Braga: Universidade do Minho.
Pistrang, N., Barker, C., & Rutter, C. (1997). Social support as conversation: Analyzing breast cancer patient’s interactions with their partners. Social Science and Medicine, 45(5), 773-782.
Resende, C., & Azevedo, F. (2002). Psoríase. Lisboa: Permanyer Portugal.
Richards, H. L., Chong, S. L. P., Mason, D. L., & Griffiths, C. E. M. (2002). The impact of psoriasis on healthy partners patients with psoriasis. British Journal of Dermatology, 147(62), 40.
Richards, H. L., Fortune, D. G., Macelhone, K., Kirby, B., Main, C. J., & Griffiths, C. E. M. (2003). The psychological impact of psoriasis: does successful treatment result in meaningful improvements in patients’ well-being? Dermatology and Psychosomatics, 4, 116.
Rolland, J. S. (1994). Families, illness and disability: An integrative treatment model. New York: Basic Books.
Russo, P. A., Ilchef, R., & Cooper, A. J. (2004). Psychiatric morbidity in psoriasis: A review. Australasian Journal of Dermatology, 45, 155”“159.
Sampogna, F., Gisondi, P., Tabolli, S., & Abeni, D. (2007). Impairment of sexual life in patients with psoriasis. Dermatology, 214, 144-150.
Schmid-Ott, G., Stephan, M., & Werfel, T. (2003). Psoriasis. Dermatology and Psychosomatics, 4, 169-171.
Schmitt, J., & Ford, D. E. (2010). Psoriasis is independently associated with psychiatric morbidity and adverse cardiovascular risk factors, but not with cardiovascular events in a population-based sample. Journal of the European Academy of Dermatology and Venereology, 24(8), 1-8.
Schmitt, J. M., & Ford, D. E. (2006). Work limitations and productivity loss are associated with health-related quality of life but not with clinical severity in patients with psoriasis. Dermatology, 213 (2), 102-110.
Schmitt, J. M., & Ford, D. E. (2007). Role of depression in quality of life for patients with psoriasis. Dermatology, 215, 17”“27.
Skevington, S. M., Bradshaw, J., Hepplewhite, A., Dawkes, K., & Lovell, C. R. (2006). How does psoriasis affect quality of life? Assessing an Ingram-regimen outpatient programme and validating the WHOQOL-100. British Journal of Dermatology, 154, 680-691.
Spielberger, C. D., Gorush, R., Lushene, R., Vagg P.R., & Jacobs, G. A. (1983). Manual for the State-Trait Anxiety Inventory. Palo Alto, CA: Consulting Psychologists Press.
Tantleff-Dunn, S., & Gokee, J. L. (2002). Interpersonal influence on body image development. In T. F. Cash, T. Pruzinsky (Eds.), Body image: A Handbook of theory, research and clinical practice (pp.108-1124). London: Guildford press.
Wahl, A., Loge, J. H., Wiklund, I., & Hanestad, B. R. (2000). The burden of psoriasis: A study concerning health-related quality of life among Norwegian adult patients with psoriasis compared with general population norms. Journal of the American Academy of Dermatology, 43(5), 803-808.
Walker, C., & Papadopoulos, L. (2005). Psychodermatology: The psychological impact of skin disorders. New York: Cambridge University Press.
Zachariae, R., Zachariae, H., Blomqvist, K., Davidsson, S., Molin, L., Mork, C., & Sigurgeirsson, B. (2002). Quality of life in 6497 Nordic patients with psoriasis. British Journal of Dermatology, 146(6), 1006-1016.
Zigmond, A. S., & Snaith, R. P. (1983). The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica, 67(6), 361-370.
Basra, M. K. A., & Finlay, A. Y. (2007). The family impact of skin diseases: The greater patient concept. British Journal of Dermatology, 156(5), 929-937.
Basto, L. (2008). Variáveis psicossociais na psoríase: um estudo com doentes e seus parceiros. Dissertação de Mestrado, Universidade do Minho, Braga, Portugal.
Beck, A. T, Steer, R. A. & Brown, G. K. (1996). Manual for the Beck Depression Inventory-II. San Antonio, TX: Psychological Corporation.
Brito, L., & Pereira, M. G. (2008). Morbilidade psicológica e imagem corporal em doentes com psoríase: estudo das características psicométricas do Hospital Anxiety and Depression Scale. In C. Machado, L. Almeida, M. Guisande, M. Gonçalves, & V. Ramalho (Eds.), Livro de Actas da XIII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. A129). Braga: Universidade do Minho.
Busby, D. M., Christensen, C., Crabe, D. R., & Larson, J. H. (1995). A revision of the dyadic adjustment scale for use with distressed and non distressed couples: Construct hierarchy and multidimensional scales. Journal of Marital and Family Therapy, 21(3), 289-308.
Cabral, M. F., Baptista, A., Cabrita, J., Caetano, M., Cardoso, R., Cirne de Castro, J. L., Tellechea, O., Dessai, S., & Vieira, R. (2005). Avaliação epidemiológica da psoríase moderada a grave em Portugal e Espanha. Psoríase Newsletter, 2.
Choi, J., & Koo, J. Y. (2003). Quality of issues in psoriasis. Journal of the American Academy of Dermatology, 49 (suppl.), S57- 61.
Cotrim, H., & Pereira, M. G. (2008). Imagem corporal, morbilidade psicológica e qualidade de vida em doentes com cancro colorectal: Estudos das características psicométricas do Body Image Scale. In C. Machado, L. Almeida, M. Guisande, M. Gonçalves & V. Ramalho (Eds.), Livro de Actas da XIII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. A130). Braga: Universidade do Minho.
D’Ardenne, P. (2004). The couple sharing long-term illness. Sexual and Relationship Therapy, 19(3), 291-308.
Eghlileb, A. M., Davies, E. E. G., & Finlay, A. Y. (2007). Psoriasis has a major secondary impact on the lives of family members and partners. British Journal of Dermatology, 156(6), 1245-1250.
Esposito, M., Saraceno, R., Giunta, A., Maccarone, M., & Chimenti, S. (2006). An Italian study on psoriasis and depression. Dermatology, 212, 123”“127.
Finlay, A. Y. (2001). Psoriasis from the patient’s point of view. Archives of Dermatology, 137, 352-353.
Finlay, A. Y., & Coles, E. C. (1995). The effect of severe psoriasis on the quality of life of 369 patients. British Journal of Dermatology, 132(2), 236-44.
Frangos, J. E., & Kimball, A. B. (2008). Divorce â„marriage ratio in patients with psoriasis compared to patients with other chronic medical conditions. Journal of Investigative Dermatology, 128(suppl. 1), S87.
Fry, L. (2004). An atlas of psoriasis (2ª ed.). London: Taylor & Francis.
Gardinal, I., Ammoury, A., & Paul, C. (2009). Moderate to severe psoriasis: From topical to biological treatment. Journal of the European Academy of Dermatology and Venereology, 23, 1324”“1326.
Gordon, P. A., & Perrone, K. M. (2004). When spouses become caregivers: Counseling implications for younger couples. Journal of Rehabilitation, 70(2), 27-32.
Gottlieb, A. B. (2005). Therapeutic options in the treatment of psoriasis and atopic dermatitis. Journal of the American Academy of Dermatology, 53, s3-16.
Griffiths, C. E., & Barker, J. N. (2007). Pathogenesis and clinical features of psoriasis. Lancet, 370, 263-271.
Hayes, J., & Koo, J. (2010). Psoriasis: Depression, anxiety, smoking, and drinking habits. Dermatology Therapy, 23(2), 174-80.
Hopwood, P., Fletcher, I., Lee, A., & Al Ghazal, S. (2001). A body image scale for use with cancer patients. European Journal of Cancer, 37, 189-197.
Jerant, A. F., Von Friederichs-Fitzwater, M. M., & Moore, M. (2005). Patients’ perceived barriers to active self-management of chronic conditions. Patient Education and Counseling, 57, 300-307.
Kellet, S. (2002). Shame-focused acne: A biopsychosocial conceptualisation and treatment rationale. In P. Gilbert & J. Miles (Eds.), Body shame: Conceptualisation, research and treatment (pp. 135-154). East Sussex: Brunner-Routledge.
Kent, G. (2000). Understanding the experiences of people with disfigurements: An integration of four models of social and psychological functioning. Psychology, Health and Medicine, 5(2), 117-129.
Koo, J., Lee, E., Lee, C. S., & Lebwohl, M. (2004). Psoriasis. Journal of the American Academy of Dermatology, 50, 613”“622.
Leibovici, V., Canetti, L., Yahalomi, S., Cooper-Kazaz, R., Bonne, O., Ingber, A., & Bachar, E. (2010). Well being, psychopathology and coping strategies in psoriasis compared with atopic dermatitis: A controlled study. Journal of the European Academy of Dermatology and Venereology, 24, 897”“903.
Magin, P., Adams, J., Heading, G., Pond, D., & Wayne, S. (2009). The psychological sequelae of psoriasis: Results of a qualitative study. Psychology, Health & Medicine, 14(2), 150-161.
McCubbin, H. I., Larsen, A. S., & Olson, D. H. (1991). F-COPES: Family Crisis Oriented Personal Evaluation Scales. In H. McCubbin & H. Thompson (Eds.), Family assessment inventories for research and practice (2a ed., pp. 203-216). Madison, WI: University of Wisconsin-Madison.
McIntyre, L., & McIntyre, S. (1995). State Trait Anxiety Inventory (STAI) ”“ versão de investigação. Braga: Universidade do Minho.
McIntyre, M., & Araújo-Soares, V. (1999). Inventário da Depressão de Beck: Estudo de validade numa amostra de doentes com dor crónica. In A.P. Soares, S. Araújo, & S. Caires (Eds.), Livro de Actas da VII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. 245-255). Braga: Universidade do Minho.
Mendes, F., & Relvas, A. P. (1999). Family relationships and primary prevention of drug use on early adolescence. Valencia: IREFREA & European Commission.
Northouse, L. L., Mood, D., Templin, T., Mellon, S., George, T. (2000). Couples’ patterns of adjustment to colon cancer. Social Science & Medicine, 50(2), 271-284.
Papadopoulos, L., & Walker, C. (2003). Understanding skin problems. London: John Wiley & Sons.
Pereira, M. G. (2003). Escala Revista de Ajustamento Diádico (RDAS) ”“ Versão de Investigação. Braga: Universidade do Minho.
Pereira, M. G., & Brito, L. (2008). Psoriasis Disability Index ”“ Versão de Investigação. Braga: Universidade do Minho.
Pistrang, N., Barker, C., & Rutter, C. (1997). Social support as conversation: Analyzing breast cancer patient’s interactions with their partners. Social Science and Medicine, 45(5), 773-782.
Resende, C., & Azevedo, F. (2002). Psoríase. Lisboa: Permanyer Portugal.
Richards, H. L., Chong, S. L. P., Mason, D. L., & Griffiths, C. E. M. (2002). The impact of psoriasis on healthy partners patients with psoriasis. British Journal of Dermatology, 147(62), 40.
Richards, H. L., Fortune, D. G., Macelhone, K., Kirby, B., Main, C. J., & Griffiths, C. E. M. (2003). The psychological impact of psoriasis: does successful treatment result in meaningful improvements in patients’ well-being? Dermatology and Psychosomatics, 4, 116.
Rolland, J. S. (1994). Families, illness and disability: An integrative treatment model. New York: Basic Books.
Russo, P. A., Ilchef, R., & Cooper, A. J. (2004). Psychiatric morbidity in psoriasis: A review. Australasian Journal of Dermatology, 45, 155”“159.
Sampogna, F., Gisondi, P., Tabolli, S., & Abeni, D. (2007). Impairment of sexual life in patients with psoriasis. Dermatology, 214, 144-150.
Schmid-Ott, G., Stephan, M., & Werfel, T. (2003). Psoriasis. Dermatology and Psychosomatics, 4, 169-171.
Schmitt, J., & Ford, D. E. (2010). Psoriasis is independently associated with psychiatric morbidity and adverse cardiovascular risk factors, but not with cardiovascular events in a population-based sample. Journal of the European Academy of Dermatology and Venereology, 24(8), 1-8.
Schmitt, J. M., & Ford, D. E. (2006). Work limitations and productivity loss are associated with health-related quality of life but not with clinical severity in patients with psoriasis. Dermatology, 213 (2), 102-110.
Schmitt, J. M., & Ford, D. E. (2007). Role of depression in quality of life for patients with psoriasis. Dermatology, 215, 17”“27.
Skevington, S. M., Bradshaw, J., Hepplewhite, A., Dawkes, K., & Lovell, C. R. (2006). How does psoriasis affect quality of life? Assessing an Ingram-regimen outpatient programme and validating the WHOQOL-100. British Journal of Dermatology, 154, 680-691.
Spielberger, C. D., Gorush, R., Lushene, R., Vagg P.R., & Jacobs, G. A. (1983). Manual for the State-Trait Anxiety Inventory. Palo Alto, CA: Consulting Psychologists Press.
Tantleff-Dunn, S., & Gokee, J. L. (2002). Interpersonal influence on body image development. In T. F. Cash, T. Pruzinsky (Eds.), Body image: A Handbook of theory, research and clinical practice (pp.108-1124). London: Guildford press.
Wahl, A., Loge, J. H., Wiklund, I., & Hanestad, B. R. (2000). The burden of psoriasis: A study concerning health-related quality of life among Norwegian adult patients with psoriasis compared with general population norms. Journal of the American Academy of Dermatology, 43(5), 803-808.
Walker, C., & Papadopoulos, L. (2005). Psychodermatology: The psychological impact of skin disorders. New York: Cambridge University Press.
Zachariae, R., Zachariae, H., Blomqvist, K., Davidsson, S., Molin, L., Mork, C., & Sigurgeirsson, B. (2002). Quality of life in 6497 Nordic patients with psoriasis. British Journal of Dermatology, 146(6), 1006-1016.
Zigmond, A. S., & Snaith, R. P. (1983). The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica, 67(6), 361-370.
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Published
2012-07-02
How to Cite
Brito, L., & Maria da Graça, P. (2012). Individual and Family Variables in Psoriasis:: A Study with Patients and Partners. Psicologia: Teoria E Pesquisa, 28(2), 171–179. Retrieved from https://periodicos.unb.br/index.php/revistaptp/article/view/17565
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Estudos Empíricos
