Variáveis Individuais e Familiares na Psoríase:
Um estudo com Doentes e Parceiros
Palavras-chave:
Psicologia da Saúde, Psoríase, Doentes, Parceiros, Variáveis PsicológicasResumo
O presente trabalho avalia a Morbilidade, Qualidade de Vida, Ajustamento de Casal, Coping Familiar e Imagem Corporal em doentes com psoríase (n=101) e seus parceiros (n=78) considerando o tipo de tratamento e idade de início da doença.
Os resultados revelaram uma relação positiva entre Ajustamento de Casal, Morbilidade e Coping nos doentes e as mesmas variáveis nos parceiros. Por sua vez, pior Qualidade de Vida no doente está associada a mais Morbilidade no parceiro.
O grupo com inicio da doença entre os 16 e os 30 anos apresentou mais Morbilidade. O grupo de tratamento combinado apresentou pior Qualidade de Vida e este juntamente com o da fototerapia apresentaram pior Imagem Corporal. Em termos de predictores, verificou-se que melhor Ajustamento de Casal e menor Ansiedade Estado no parceiro previam o Ajustamento de Casal no doente e que a satisfação com a Imagem Corporal previa melhor Qualidade de Vida no doente.
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Referências
Bahmer, J. A., Kuhl, J., & Bahmer, F. A. (2007). How do personality systems interact in patients with psoriasis, atopic dermatitis and urticaria? Acta Dermato-Venereologica, 87, 317”“324.
Basra, M. K. A., & Finlay, A. Y. (2007). The family impact of skin diseases: The greater patient concept. British Journal of Dermatology, 156(5), 929-937.
Basto, L. (2008). Variáveis psicossociais na psoríase: um estudo com doentes e seus parceiros. Dissertação de Mestrado, Universidade do Minho, Braga, Portugal.
Beck, A. T, Steer, R. A. & Brown, G. K. (1996). Manual for the Beck Depression Inventory-II. San Antonio, TX: Psychological Corporation.
Brito, L., & Pereira, M. G. (2008). Morbilidade psicológica e imagem corporal em doentes com psoríase: estudo das características psicométricas do Hospital Anxiety and Depression Scale. In C. Machado, L. Almeida, M. Guisande, M. Gonçalves, & V. Ramalho (Eds.), Livro de Actas da XIII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. A129). Braga: Universidade do Minho.
Busby, D. M., Christensen, C., Crabe, D. R., & Larson, J. H. (1995). A revision of the dyadic adjustment scale for use with distressed and non distressed couples: Construct hierarchy and multidimensional scales. Journal of Marital and Family Therapy, 21(3), 289-308.
Cabral, M. F., Baptista, A., Cabrita, J., Caetano, M., Cardoso, R., Cirne de Castro, J. L., Tellechea, O., Dessai, S., & Vieira, R. (2005). Avaliação epidemiológica da psoríase moderada a grave em Portugal e Espanha. Psoríase Newsletter, 2.
Choi, J., & Koo, J. Y. (2003). Quality of issues in psoriasis. Journal of the American Academy of Dermatology, 49 (suppl.), S57- 61.
Cotrim, H., & Pereira, M. G. (2008). Imagem corporal, morbilidade psicológica e qualidade de vida em doentes com cancro colorectal: Estudos das características psicométricas do Body Image Scale. In C. Machado, L. Almeida, M. Guisande, M. Gonçalves & V. Ramalho (Eds.), Livro de Actas da XIII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. A130). Braga: Universidade do Minho.
D’Ardenne, P. (2004). The couple sharing long-term illness. Sexual and Relationship Therapy, 19(3), 291-308.
Eghlileb, A. M., Davies, E. E. G., & Finlay, A. Y. (2007). Psoriasis has a major secondary impact on the lives of family members and partners. British Journal of Dermatology, 156(6), 1245-1250.
Esposito, M., Saraceno, R., Giunta, A., Maccarone, M., & Chimenti, S. (2006). An Italian study on psoriasis and depression. Dermatology, 212, 123”“127.
Finlay, A. Y. (2001). Psoriasis from the patient’s point of view. Archives of Dermatology, 137, 352-353.
Finlay, A. Y., & Coles, E. C. (1995). The effect of severe psoriasis on the quality of life of 369 patients. British Journal of Dermatology, 132(2), 236-44.
Frangos, J. E., & Kimball, A. B. (2008). Divorce â„marriage ratio in patients with psoriasis compared to patients with other chronic medical conditions. Journal of Investigative Dermatology, 128(suppl. 1), S87.
Fry, L. (2004). An atlas of psoriasis (2ª ed.). London: Taylor & Francis.
Gardinal, I., Ammoury, A., & Paul, C. (2009). Moderate to severe psoriasis: From topical to biological treatment. Journal of the European Academy of Dermatology and Venereology, 23, 1324”“1326.
Gordon, P. A., & Perrone, K. M. (2004). When spouses become caregivers: Counseling implications for younger couples. Journal of Rehabilitation, 70(2), 27-32.
Gottlieb, A. B. (2005). Therapeutic options in the treatment of psoriasis and atopic dermatitis. Journal of the American Academy of Dermatology, 53, s3-16.
Griffiths, C. E., & Barker, J. N. (2007). Pathogenesis and clinical features of psoriasis. Lancet, 370, 263-271.
Hayes, J., & Koo, J. (2010). Psoriasis: Depression, anxiety, smoking, and drinking habits. Dermatology Therapy, 23(2), 174-80.
Hopwood, P., Fletcher, I., Lee, A., & Al Ghazal, S. (2001). A body image scale for use with cancer patients. European Journal of Cancer, 37, 189-197.
Jerant, A. F., Von Friederichs-Fitzwater, M. M., & Moore, M. (2005). Patients’ perceived barriers to active self-management of chronic conditions. Patient Education and Counseling, 57, 300-307.
Kellet, S. (2002). Shame-focused acne: A biopsychosocial conceptualisation and treatment rationale. In P. Gilbert & J. Miles (Eds.), Body shame: Conceptualisation, research and treatment (pp. 135-154). East Sussex: Brunner-Routledge.
Kent, G. (2000). Understanding the experiences of people with disfigurements: An integration of four models of social and psychological functioning. Psychology, Health and Medicine, 5(2), 117-129.
Koo, J., Lee, E., Lee, C. S., & Lebwohl, M. (2004). Psoriasis. Journal of the American Academy of Dermatology, 50, 613”“622.
Leibovici, V., Canetti, L., Yahalomi, S., Cooper-Kazaz, R., Bonne, O., Ingber, A., & Bachar, E. (2010). Well being, psychopathology and coping strategies in psoriasis compared with atopic dermatitis: A controlled study. Journal of the European Academy of Dermatology and Venereology, 24, 897”“903.
Magin, P., Adams, J., Heading, G., Pond, D., & Wayne, S. (2009). The psychological sequelae of psoriasis: Results of a qualitative study. Psychology, Health & Medicine, 14(2), 150-161.
McCubbin, H. I., Larsen, A. S., & Olson, D. H. (1991). F-COPES: Family Crisis Oriented Personal Evaluation Scales. In H. McCubbin & H. Thompson (Eds.), Family assessment inventories for research and practice (2a ed., pp. 203-216). Madison, WI: University of Wisconsin-Madison.
McIntyre, L., & McIntyre, S. (1995). State Trait Anxiety Inventory (STAI) ”“ versão de investigação. Braga: Universidade do Minho.
McIntyre, M., & Araújo-Soares, V. (1999). Inventário da Depressão de Beck: Estudo de validade numa amostra de doentes com dor crónica. In A.P. Soares, S. Araújo, & S. Caires (Eds.), Livro de Actas da VII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. 245-255). Braga: Universidade do Minho.
Mendes, F., & Relvas, A. P. (1999). Family relationships and primary prevention of drug use on early adolescence. Valencia: IREFREA & European Commission.
Northouse, L. L., Mood, D., Templin, T., Mellon, S., George, T. (2000). Couples’ patterns of adjustment to colon cancer. Social Science & Medicine, 50(2), 271-284.
Papadopoulos, L., & Walker, C. (2003). Understanding skin problems. London: John Wiley & Sons.
Pereira, M. G. (2003). Escala Revista de Ajustamento Diádico (RDAS) ”“ Versão de Investigação. Braga: Universidade do Minho.
Pereira, M. G., & Brito, L. (2008). Psoriasis Disability Index ”“ Versão de Investigação. Braga: Universidade do Minho.
Pistrang, N., Barker, C., & Rutter, C. (1997). Social support as conversation: Analyzing breast cancer patient’s interactions with their partners. Social Science and Medicine, 45(5), 773-782.
Resende, C., & Azevedo, F. (2002). Psoríase. Lisboa: Permanyer Portugal.
Richards, H. L., Chong, S. L. P., Mason, D. L., & Griffiths, C. E. M. (2002). The impact of psoriasis on healthy partners patients with psoriasis. British Journal of Dermatology, 147(62), 40.
Richards, H. L., Fortune, D. G., Macelhone, K., Kirby, B., Main, C. J., & Griffiths, C. E. M. (2003). The psychological impact of psoriasis: does successful treatment result in meaningful improvements in patients’ well-being? Dermatology and Psychosomatics, 4, 116.
Rolland, J. S. (1994). Families, illness and disability: An integrative treatment model. New York: Basic Books.
Russo, P. A., Ilchef, R., & Cooper, A. J. (2004). Psychiatric morbidity in psoriasis: A review. Australasian Journal of Dermatology, 45, 155”“159.
Sampogna, F., Gisondi, P., Tabolli, S., & Abeni, D. (2007). Impairment of sexual life in patients with psoriasis. Dermatology, 214, 144-150.
Schmid-Ott, G., Stephan, M., & Werfel, T. (2003). Psoriasis. Dermatology and Psychosomatics, 4, 169-171.
Schmitt, J., & Ford, D. E. (2010). Psoriasis is independently associated with psychiatric morbidity and adverse cardiovascular risk factors, but not with cardiovascular events in a population-based sample. Journal of the European Academy of Dermatology and Venereology, 24(8), 1-8.
Schmitt, J. M., & Ford, D. E. (2006). Work limitations and productivity loss are associated with health-related quality of life but not with clinical severity in patients with psoriasis. Dermatology, 213 (2), 102-110.
Schmitt, J. M., & Ford, D. E. (2007). Role of depression in quality of life for patients with psoriasis. Dermatology, 215, 17”“27.
Skevington, S. M., Bradshaw, J., Hepplewhite, A., Dawkes, K., & Lovell, C. R. (2006). How does psoriasis affect quality of life? Assessing an Ingram-regimen outpatient programme and validating the WHOQOL-100. British Journal of Dermatology, 154, 680-691.
Spielberger, C. D., Gorush, R., Lushene, R., Vagg P.R., & Jacobs, G. A. (1983). Manual for the State-Trait Anxiety Inventory. Palo Alto, CA: Consulting Psychologists Press.
Tantleff-Dunn, S., & Gokee, J. L. (2002). Interpersonal influence on body image development. In T. F. Cash, T. Pruzinsky (Eds.), Body image: A Handbook of theory, research and clinical practice (pp.108-1124). London: Guildford press.
Wahl, A., Loge, J. H., Wiklund, I., & Hanestad, B. R. (2000). The burden of psoriasis: A study concerning health-related quality of life among Norwegian adult patients with psoriasis compared with general population norms. Journal of the American Academy of Dermatology, 43(5), 803-808.
Walker, C., & Papadopoulos, L. (2005). Psychodermatology: The psychological impact of skin disorders. New York: Cambridge University Press.
Zachariae, R., Zachariae, H., Blomqvist, K., Davidsson, S., Molin, L., Mork, C., & Sigurgeirsson, B. (2002). Quality of life in 6497 Nordic patients with psoriasis. British Journal of Dermatology, 146(6), 1006-1016.
Zigmond, A. S., & Snaith, R. P. (1983). The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica, 67(6), 361-370.
Basra, M. K. A., & Finlay, A. Y. (2007). The family impact of skin diseases: The greater patient concept. British Journal of Dermatology, 156(5), 929-937.
Basto, L. (2008). Variáveis psicossociais na psoríase: um estudo com doentes e seus parceiros. Dissertação de Mestrado, Universidade do Minho, Braga, Portugal.
Beck, A. T, Steer, R. A. & Brown, G. K. (1996). Manual for the Beck Depression Inventory-II. San Antonio, TX: Psychological Corporation.
Brito, L., & Pereira, M. G. (2008). Morbilidade psicológica e imagem corporal em doentes com psoríase: estudo das características psicométricas do Hospital Anxiety and Depression Scale. In C. Machado, L. Almeida, M. Guisande, M. Gonçalves, & V. Ramalho (Eds.), Livro de Actas da XIII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. A129). Braga: Universidade do Minho.
Busby, D. M., Christensen, C., Crabe, D. R., & Larson, J. H. (1995). A revision of the dyadic adjustment scale for use with distressed and non distressed couples: Construct hierarchy and multidimensional scales. Journal of Marital and Family Therapy, 21(3), 289-308.
Cabral, M. F., Baptista, A., Cabrita, J., Caetano, M., Cardoso, R., Cirne de Castro, J. L., Tellechea, O., Dessai, S., & Vieira, R. (2005). Avaliação epidemiológica da psoríase moderada a grave em Portugal e Espanha. Psoríase Newsletter, 2.
Choi, J., & Koo, J. Y. (2003). Quality of issues in psoriasis. Journal of the American Academy of Dermatology, 49 (suppl.), S57- 61.
Cotrim, H., & Pereira, M. G. (2008). Imagem corporal, morbilidade psicológica e qualidade de vida em doentes com cancro colorectal: Estudos das características psicométricas do Body Image Scale. In C. Machado, L. Almeida, M. Guisande, M. Gonçalves & V. Ramalho (Eds.), Livro de Actas da XIII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. A130). Braga: Universidade do Minho.
D’Ardenne, P. (2004). The couple sharing long-term illness. Sexual and Relationship Therapy, 19(3), 291-308.
Eghlileb, A. M., Davies, E. E. G., & Finlay, A. Y. (2007). Psoriasis has a major secondary impact on the lives of family members and partners. British Journal of Dermatology, 156(6), 1245-1250.
Esposito, M., Saraceno, R., Giunta, A., Maccarone, M., & Chimenti, S. (2006). An Italian study on psoriasis and depression. Dermatology, 212, 123”“127.
Finlay, A. Y. (2001). Psoriasis from the patient’s point of view. Archives of Dermatology, 137, 352-353.
Finlay, A. Y., & Coles, E. C. (1995). The effect of severe psoriasis on the quality of life of 369 patients. British Journal of Dermatology, 132(2), 236-44.
Frangos, J. E., & Kimball, A. B. (2008). Divorce â„marriage ratio in patients with psoriasis compared to patients with other chronic medical conditions. Journal of Investigative Dermatology, 128(suppl. 1), S87.
Fry, L. (2004). An atlas of psoriasis (2ª ed.). London: Taylor & Francis.
Gardinal, I., Ammoury, A., & Paul, C. (2009). Moderate to severe psoriasis: From topical to biological treatment. Journal of the European Academy of Dermatology and Venereology, 23, 1324”“1326.
Gordon, P. A., & Perrone, K. M. (2004). When spouses become caregivers: Counseling implications for younger couples. Journal of Rehabilitation, 70(2), 27-32.
Gottlieb, A. B. (2005). Therapeutic options in the treatment of psoriasis and atopic dermatitis. Journal of the American Academy of Dermatology, 53, s3-16.
Griffiths, C. E., & Barker, J. N. (2007). Pathogenesis and clinical features of psoriasis. Lancet, 370, 263-271.
Hayes, J., & Koo, J. (2010). Psoriasis: Depression, anxiety, smoking, and drinking habits. Dermatology Therapy, 23(2), 174-80.
Hopwood, P., Fletcher, I., Lee, A., & Al Ghazal, S. (2001). A body image scale for use with cancer patients. European Journal of Cancer, 37, 189-197.
Jerant, A. F., Von Friederichs-Fitzwater, M. M., & Moore, M. (2005). Patients’ perceived barriers to active self-management of chronic conditions. Patient Education and Counseling, 57, 300-307.
Kellet, S. (2002). Shame-focused acne: A biopsychosocial conceptualisation and treatment rationale. In P. Gilbert & J. Miles (Eds.), Body shame: Conceptualisation, research and treatment (pp. 135-154). East Sussex: Brunner-Routledge.
Kent, G. (2000). Understanding the experiences of people with disfigurements: An integration of four models of social and psychological functioning. Psychology, Health and Medicine, 5(2), 117-129.
Koo, J., Lee, E., Lee, C. S., & Lebwohl, M. (2004). Psoriasis. Journal of the American Academy of Dermatology, 50, 613”“622.
Leibovici, V., Canetti, L., Yahalomi, S., Cooper-Kazaz, R., Bonne, O., Ingber, A., & Bachar, E. (2010). Well being, psychopathology and coping strategies in psoriasis compared with atopic dermatitis: A controlled study. Journal of the European Academy of Dermatology and Venereology, 24, 897”“903.
Magin, P., Adams, J., Heading, G., Pond, D., & Wayne, S. (2009). The psychological sequelae of psoriasis: Results of a qualitative study. Psychology, Health & Medicine, 14(2), 150-161.
McCubbin, H. I., Larsen, A. S., & Olson, D. H. (1991). F-COPES: Family Crisis Oriented Personal Evaluation Scales. In H. McCubbin & H. Thompson (Eds.), Family assessment inventories for research and practice (2a ed., pp. 203-216). Madison, WI: University of Wisconsin-Madison.
McIntyre, L., & McIntyre, S. (1995). State Trait Anxiety Inventory (STAI) ”“ versão de investigação. Braga: Universidade do Minho.
McIntyre, M., & Araújo-Soares, V. (1999). Inventário da Depressão de Beck: Estudo de validade numa amostra de doentes com dor crónica. In A.P. Soares, S. Araújo, & S. Caires (Eds.), Livro de Actas da VII Conferência Internacional Avaliação Psicológica: Formas e Contextos (pp. 245-255). Braga: Universidade do Minho.
Mendes, F., & Relvas, A. P. (1999). Family relationships and primary prevention of drug use on early adolescence. Valencia: IREFREA & European Commission.
Northouse, L. L., Mood, D., Templin, T., Mellon, S., George, T. (2000). Couples’ patterns of adjustment to colon cancer. Social Science & Medicine, 50(2), 271-284.
Papadopoulos, L., & Walker, C. (2003). Understanding skin problems. London: John Wiley & Sons.
Pereira, M. G. (2003). Escala Revista de Ajustamento Diádico (RDAS) ”“ Versão de Investigação. Braga: Universidade do Minho.
Pereira, M. G., & Brito, L. (2008). Psoriasis Disability Index ”“ Versão de Investigação. Braga: Universidade do Minho.
Pistrang, N., Barker, C., & Rutter, C. (1997). Social support as conversation: Analyzing breast cancer patient’s interactions with their partners. Social Science and Medicine, 45(5), 773-782.
Resende, C., & Azevedo, F. (2002). Psoríase. Lisboa: Permanyer Portugal.
Richards, H. L., Chong, S. L. P., Mason, D. L., & Griffiths, C. E. M. (2002). The impact of psoriasis on healthy partners patients with psoriasis. British Journal of Dermatology, 147(62), 40.
Richards, H. L., Fortune, D. G., Macelhone, K., Kirby, B., Main, C. J., & Griffiths, C. E. M. (2003). The psychological impact of psoriasis: does successful treatment result in meaningful improvements in patients’ well-being? Dermatology and Psychosomatics, 4, 116.
Rolland, J. S. (1994). Families, illness and disability: An integrative treatment model. New York: Basic Books.
Russo, P. A., Ilchef, R., & Cooper, A. J. (2004). Psychiatric morbidity in psoriasis: A review. Australasian Journal of Dermatology, 45, 155”“159.
Sampogna, F., Gisondi, P., Tabolli, S., & Abeni, D. (2007). Impairment of sexual life in patients with psoriasis. Dermatology, 214, 144-150.
Schmid-Ott, G., Stephan, M., & Werfel, T. (2003). Psoriasis. Dermatology and Psychosomatics, 4, 169-171.
Schmitt, J., & Ford, D. E. (2010). Psoriasis is independently associated with psychiatric morbidity and adverse cardiovascular risk factors, but not with cardiovascular events in a population-based sample. Journal of the European Academy of Dermatology and Venereology, 24(8), 1-8.
Schmitt, J. M., & Ford, D. E. (2006). Work limitations and productivity loss are associated with health-related quality of life but not with clinical severity in patients with psoriasis. Dermatology, 213 (2), 102-110.
Schmitt, J. M., & Ford, D. E. (2007). Role of depression in quality of life for patients with psoriasis. Dermatology, 215, 17”“27.
Skevington, S. M., Bradshaw, J., Hepplewhite, A., Dawkes, K., & Lovell, C. R. (2006). How does psoriasis affect quality of life? Assessing an Ingram-regimen outpatient programme and validating the WHOQOL-100. British Journal of Dermatology, 154, 680-691.
Spielberger, C. D., Gorush, R., Lushene, R., Vagg P.R., & Jacobs, G. A. (1983). Manual for the State-Trait Anxiety Inventory. Palo Alto, CA: Consulting Psychologists Press.
Tantleff-Dunn, S., & Gokee, J. L. (2002). Interpersonal influence on body image development. In T. F. Cash, T. Pruzinsky (Eds.), Body image: A Handbook of theory, research and clinical practice (pp.108-1124). London: Guildford press.
Wahl, A., Loge, J. H., Wiklund, I., & Hanestad, B. R. (2000). The burden of psoriasis: A study concerning health-related quality of life among Norwegian adult patients with psoriasis compared with general population norms. Journal of the American Academy of Dermatology, 43(5), 803-808.
Walker, C., & Papadopoulos, L. (2005). Psychodermatology: The psychological impact of skin disorders. New York: Cambridge University Press.
Zachariae, R., Zachariae, H., Blomqvist, K., Davidsson, S., Molin, L., Mork, C., & Sigurgeirsson, B. (2002). Quality of life in 6497 Nordic patients with psoriasis. British Journal of Dermatology, 146(6), 1006-1016.
Zigmond, A. S., & Snaith, R. P. (1983). The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica, 67(6), 361-370.
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2012-07-02
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Brito, L., & Maria da Graça, P. (2012). Variáveis Individuais e Familiares na Psoríase:: Um estudo com Doentes e Parceiros. Psicologia: Teoria E Pesquisa, 28(2), 171–179. Recuperado de https://periodicos.unb.br/index.php/revistaptp/article/view/17565
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