Senses of vulnerability: characteristic, condition, principle
Keywords:
Vulnerability. Bioethics. Human research. Clinical practice. Health policies. Biomedical investigation.Abstract
Vulnerability is a commonly used term from the current language, particularly in the last decade it has been more frequently used in bioethics discourse. This process resulted in the enunciation of the “respect for human vulnerability” as an ethical principle in the Universal Declaration on Bioethics and Human Rights, from UNESCO, approved in October 2005. In this context there is increasing effort to strictly define the meaning that vulnerability can and must assume, in bioethics field ”“ what we are here trying to contribute to. To reach our objectives, we will start from the etimological concept of the term, as a way to go back to its conceptual origin, we will also take the greatest texts about contemporaneous ethics, in which “vulnerability” is referred in a technical sense and precise way, and we will explore the differ- ent modalities of its evocation in the bioethics field specifying its practical capacity.
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References
The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. Belmont Report: ethical principles and guide- lines for the protection of human subjects of research, 1979. Disponível em: http://ohsr.od.nih.gov/guidelines/belmont.html. Acesso em: 18/10/2006.
Beauchamp, T & Childress, J. Principles of biomedical ethics, Oxford: Oxford University Press, 2002, 5th edition. p. 63.
CIOMS/WHO. International Ethical Guidelines for Biomedical Research Involving Human Subjects, 2002. Disponível em: http://www.cioms.ch/frame_ guidelines_nov_2002.html . Acesso em:18/10/2006.
WMA. Declaration of Helsinki: ethical principles for medical research involving human subjects, 2004. Disponível em:http://www.wma.net/e/policy/ b3.htm. Acesso em: 18/10/2006.
UNESCO. Universal Declaration on the Human Genome and Human Rights, 1997. Disponível em: http://portal.unesco.org/en/ev.phpURL_ID=13177&URL_DO=DO_ TOPIC&URL_SECTION=201.html . Acesso em: 18/10/2006.
Lévinas, E. L’humanisme de l’autre homme. Paris : Fata Morgana,1972.
__________. Op. cit. p. 104.
Jonas, H. Das prinzip verantwortung. Frankfurt : Isnel V, 1979.
Backlar, P. Human subjects research, ethics, research on vulnerable populations. In: Murray, T & Mchlman, M. (Eds.), Encyclopedia of ethical, legal, and policy issues in biotechnology, 2. New York: John Wiley & Sons, 2000. pp. 641-651.
Neves, MCP. Na senda da responsabilidade moral. In: Poiética do mundo. Lisboa: Edições Colibri, 2001. pp. 851-870.
UNESCO. Universal Declaration on Bioethics and Human Rights (2005). Disponível em:http://unesdoc.unesco.org/images/0014/001461/146180E.pdf. Acesso em:18/10/2006.
EU. Declaração de Barcelona. Disponível em: http://www.ethiclaw.dk/publication/THE%20BARCELONA%20Dec%20Enelsk.pdf#search=%22Barcelona%20Declaration%20bioethics%22.
Rendtorff, J & Kemp, P. (eds.), Basic ethical principles in bioethics and biolaw. I: autonomy, dignity, integrity and vulnerability. Copenhagen/Barcelona: Centre for Ethics and Law / Institut Borja de Bioètica, 2000. p. 428.